Parkinson's Movement
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Michael J Fox dyskinesia gone?

When I was at the supermarket in line I saw a magazine that claimed he was cured , inside it's not a cure but he is quoted as saying he "stumbled" upon a new combination of medications that greatly reduced his dyskinesia. (Not an exact quote but close) I find dyskenisia one of the most difficult parts of PD. Amantadine for me worked great but only for a few months. Anyone have any thoughts on what combination he may be using?

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I've always wondered what supplements he uses also, as well as what meds he uses. Seems like I've heard he had DBS, but someone said he had a different type of brain operation. I'm surprised he doesn't make that a little more public, at least to PwP's and especially if he finds something that works or doesn't work, but maybe I don't know where to find that kind of information.

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Yes I wish he would share what works for him, the article quoted him as saying it was more than one drug but I wonder if legally he can't discuss something like an unapproved supplement. Also I had seen somewhere that he had surgery that wasn't too successful many years ago but not DBS yet..

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I just found this article dated 8-24-17.....https://www.michaeljfox.org/foundation/news-detail.php?first-drug-approved-for-dyskinesia-in-parkinson-disease

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Thanks for your responses his symptoms seem better these days so I'm curious what helps him. Amantadine didn't help me for long but maybe it will for others.

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If I'm reading the article correctly that GymBag attached, they're coming out with an ER version of Amantadine that should work better.

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Ooo I hope it does not turn into a expensive Rytary thing.

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Thank you I see my neurologist in a few weeks and will ask her about it.

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Connie

In the first year of my diagnosis I remember reading a posting on a forum from a woman who took Amantadine. In her experience it stopped working after a while but if she had a short break and then took it again it worked. Just relaying another’s experience - not recommending this.

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Thank you for the information. I may try it again, when it worked it was great I felt better than I had in a long time .

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My first Neuro said that the Amantadine effectiveness might diminish after a few years. After 5 years he died and second neuro said that I might as well stop taking because he doubted it was still effective. Life was miserable. My 3rd Neuro ( motion disorder spec.) said that the story about Amantadine loosing effectiveness was false and he put me back on.

MUCH much better, 15 years now still working.

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Thank you Gymbag !! That gives me hope!!!

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