I used to belong to an organisation that I thought helped people with PD.
Last month I visited some-one in hospital with permission from there son.
The same week I collected a Pd sufferers medicine from the chemist and got him some milk/bread and eggs as he had an awful cold.
Now I have been ostracised from the organisation:- complaints from a committee a thought I knew !
Making awareness/fundraising and "helping" people is made much more harder by the rules and regs one has to follow !
I find I have been able to do a lot more for pd sufferers in the last month.
Take them to exercise classes/hosp appointments/ do there shopping etc...
While not being a member of that organisation:- Which I thought was designed to help.
So it is not always helpful belonging to a specific organisation !
You are also freer to say what you want as in specific people ie the neurologist is terrible/he never refers people, but while belonging to the organisation it was "the neurologist is a busy man/he may be to overworked and has forgot to refer you " etc...
I feel I can do more good now then ever before !!!!!!!!!!!
Any-one had experiences like this ?
Any-one heard of this before ?
Does any-one agree ?