Mentally losing it

[5050size]

Hi I've lived with chronic pancreatitis for over 24 years since diagnosed. Lived with it longer before diagnosis. Was a caregiver for my husband and mother till there passing. I was a hermit than. Had old classmates connected with me 8 years ago to get me out in the world. It doesnt seem to work because everyone eats out at restaurants and parties while I cant. Not very comfortable. I have a best friend for 6 years now which I never had and communication is far and few between lately. I'm in therapy and was told no one will understand all the trauma life is for me. I hope to get some insight on how to function with this disease without crawling back in my hole and let life pass me by without happiness.

[jimister]

I know how you feel. I've had problems for 25years. I miss out so much because I can't eat out at all. Every time I go out for a day or go to someone's house which is rare I have to pack up my own food. I can't stay in hotels, I can only do self catering holidays, so I still have to shop, cook, wash up, it's not like a holiday. The pain I'm in has got much worse over the last 18 months, I'm never free of it now. I'm so down, and fed up. My Pancreas always looks normal on mri scan but my Serum Amylase is always raised. I'm hoping to get a Coeliac plexus nerve block but was told there is only a 50% chance of it working but it's got to be worth a try. Can I ask what you take for the pain, because I can cope with the restricted diet, but the pain is really getting me down. I find I can't really be bothered with anything anymore but I have to for the sake of my partner because it is not much of life for him either. Try and meet up with friends, even if it's just for a tea, or coffee and a chat. Take a snack with you. That's what I do.

[5050size in reply to jimister]

I was taking oxycodone for about 5 years but I quit them after 5 years of taking them. I was afraid that I would become addicted or need something stronger. Were I live medical marijuana is available. I take what they call CBG. It works to numb my stomache when pain is unbearable. Yes it does contain thc but theres different strengths. I seem to have a high tolerance system but take it when its unbearable. Depression and anxiety has made me unable to sleep without medication which I hate taking. But sleep varies with or without depends on my day. I wish you nothing but the best for you. Thank you for responding jimster.

[jimister in reply to 5050size]

Unfortunately in the UK we don't have medical Marijuana. Wishing you all the best I know how hard it is to feel positive about life. Take care.

[5050size in reply to jimister]

Thank you. I wish you the best also!