Hello! My name is Avi and I lead patient-centered care efforts at Mission: Cure. We know that individuals living with pancreatitis often suffer for years before being accurately diagnosed and even after receiving a diagnosis are often left to manage the disease on their own.
We are committed to designing and developing high quality care and support for pancreatitis patients that improves health outcomes and experience.
I look forward to getting to know you and learning from your experience so we can collectively create better care pathways for individuals living with pancreatitis!
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AviK_MC
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I have recently had some new symptoms but wonder if they are at all related to my CP. My feet burn and tingle as if the nerves are burning. Is this at all connected to my CP? I don’t want to be overly paranoid about every new symptom “just in case” it’s a new development that indicates my CP has changed and is worse. It has been very enlightening to read so much medical information about CP symptoms that are so varied. As well as the comments about how the treatments are also so varied for people. I appreciate any helpful comments or advice about this . My painful feet just came on suddenly and has disturbed my sleep. Often my CP discomfort, and pain is worse at night. Could this be indication of the beginning of diabetes type C- related specifically to chronic pancreatitis?
I do feel like I've been left to deal with this on my own. It's hard when you're sick and can't get out of bed, trying to also be a doctor, nurse and pharmacist for yourself.
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