Why this isn't available in UK: Scrambler... - Pain Concern

Pain Concern

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Why this isn't available in UK

JRyder profile image
4 Replies

Scrambler therapy

Interested to read this

I have had small fibre neuropathy which has gotten progressively worse for 11years.

Taken a range of drugs all of which have bad side effects and work partially.

Was diagnosed by Prof David Bennett who is the leading research bod at John Radcliffe in Oxford. Internationally known for his work.

Emailed him about this method. Told me it's unlikely to be licensed in UK because it can't be researched under double blind conditions ie: neither patient or Doctor know if treatment being given is real or placebo.

I would point out that this also true of most pain management courses! Yet it doesn't stop the NHS fobbing us off with them after waiting months to attend a group lead by a well meaning but not-very - good volunteer. The contents of which you could have read in a book or online.

Pain Management a phrase invented by a psychologist who never had a twinge! We should demand that more research and input is focused on pain a Massive number of people are fobbed off and left to cope with minimal help.

I've just looked at the Italian research papers sounds v interesting

Will look up the various links on this site.

Anyone else tried it?

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JRyder profile image
JRyder
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4 Replies
Candy2595 profile image
Candy2595

The closest we have to this is a tens machine, have you tried one of those?

Nickidc profile image
Nickidc

Hi, I am interested in it, but I have found it difficult to find people who have actually had it. only one lady I can find on Twitter who goes to Ireland for treatment.

I have also read papers which have given positive results.

perhaps it wouldn't pass a clinical trial - but nothing I have tried yet in conventional medicine has worked either....let me know if you find out more,

Nicki

singingselves22 profile image
singingselves22

Hi I have had 2 sessions in Australia looking to travel to other side of Australia to do some more. I have a drug induced nerve pain. I have a fiend who has had good results. And others for crps. Will let you know how I go. In Australia 2 machines have come here because patients have organised them

Keep looking in uk or nearby as worth the try

Need to be off anti convulsants like lyrica a gabapentine and ketamine etc that is worth knowing

It maybe worth your while to go to Italy :)

Nickidc profile image
Nickidc

there is a clinic in Ireland that does this therapy - I am interested in going. only can find one person on twitter in the UK that has gone...be useful to get more testimonials first

best wishes,

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