Trying to figure it out : Hi Everyone, I'm... - Paget’s Support

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Trying to figure it out

HannahJG profile image
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Hi Everyone,

I'm Hannah, I'm undergoing investigation to find out what's going on but I suspect something autoimmune/connective tissue as I've had a million arthiritis tests and nothing has come from them and pagets is in my family.

I have mild hypermobility, chronic widespread joint pain and stiffness, reduced mobility, muscle pain and spasms, reynauds, IBS, breathlessness, fatigue, trouble sleeping, frequent minor illnesses (cold & sore throat) and pins and needles and loss of sensation in my hands and feet.

I find heat and pacing and grading activites help but any further advice would be welcomed. My doctor has instigated blood tests to check inflammation levels but I have no idea what else would help come to an explanation or diagnosis, are there any posts explaining people's diagnosis stories?

I'm feeling a little lost, and given this is the first time in years a doctor has taken me seriously I want to get the most out of it.

Thanks,

Hannah

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HannahJG
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Pantoe profile image
Pantoe

Ask for Steroids, if they work short term, then inflammation could be affecting every part of your system.

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