W&w : I m in w&w how long you have been... - CLL America Support

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W&w

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I m in w&w how long you have been w&w who was the longest what is the reason for you, what do you think

9 Replies
Spacee profile image
Spacee

Perhaps there is not much response because a lot of us are here for info because of needing treatment. My hubby (70yo) about 8 months but can trace the CLL back to 12/14. Doc thinks he will need treatment in a year. Hmm. Time will tell. He labs are pretty stable and he has no other symptoms. Always has been an outdoors man. Maybe that helps. He is 17p- the worst.

Linda

in reply to Spacee

Thanks spacee i wish your hubby fine

Rickc profile image
Rickc

I have been on W&W since Jan 2016. WBC and ALC have remained pretty stable. I am del 13q mutated IGvH which is the most benign. Do you know what your deletion is?

in reply to Rickc

I am del 13q

in reply to Rickc

Have you any supplement or lifestyle change or diet?(sorry for my english..I am a turkish girl..and my english poor) i you understand me i hope

Rickc profile image
Rickc in reply to

Yes. I actually wrote a review of Glenn Sabin’s book “N of 1” and referenced a really good book “ the anti-cancer book” which talks about diet, exercise, supplements, stress avoidance and toxin avoidance. You can find my review on CLL Society.org. You can buy either book on Amazon either paper or kindle

Rickc profile image
Rickc in reply to Rickc

cllsociety.org/2017/03/n-1-...

in reply to Rickc

Thanks rick i read this before

suzannetim profile image
suzannetim

I have been on. ww for 10 years. Am 13q deletion. Thank God daily for this gift. No symptoms at all except for 39k white blood count. As Dr Brian always says: “stay strong. We are in this together”

Suzanne

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