Do you Take Supplements or Have you Thought About Taking Supplements?

[aking90]

When it comes to CLL and supplements, what’s safe? Could supplements help or harm CLL patients? What has your experience been, and what has your doctor recommended? Check out our video below where  Patient Power founder Andrew Schorr asks for advice from an expert panel, including Dr. Michael Keating, Dr. Nicole Lamanna and Dr. Zeev Estrov about this topic. Let us know what you think in the comments section!

patientpower.info/video/exp...

[NoClew]

I noticed a clinical trial at Mayo Clinic re:  Vitamin D deficiency and CLL progression.  Had my D3 checked, and yes, I was deficient.  It was already too late for me to join the trial, (for newly diagnosed CLL) but I've been "self medicating" for the past 3 years with 8,000 to 10,000 IU daily, bringing my level from 23 to 57.  (normal range 30 - 100)  Sadly, it has not slowed my CLL progression, after 8 yrs of WW, it is now time treat, but I've been much better at fighting off colds and bronchitis.  One - 20,000 IU sub-lingual spray dose nips it in the bud!

[Gisygirl in reply to NoClew]

My hematologist took me off all vitamins except Calcium and D. I also take Vit. C. He said I was taking way too much Vit A which is not water soluble. It has been nearly 4 years since I was diagnosed with CLL with 17P deletion, 3 years since treatment started ( Imbruvica) and everything is in the Normal range except my platelets are low 118.