CLL America from Patient Power
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Know a Cller from Hong Kong?

Dear CLL friends. I’ve been part of this group since 1996 and, thank God, continue to do well although my WBC is inching up a bit.

I know there are members from everywhere but I have no clue whether there is anyone from Hong Kong. Nevertheless, I’d love to connect with them. So, in an effort to be international, here’s my invitation to connect in Cantonese. If you know anyone where this would apply, please forward. Thanks! Andrew Schorr.

親愛的慢性淋巴细胞白血病(Chronic Lymphocytic Leukemia, CLL) 病友:

慢性淋巴细胞白血病(CLL) 在世界各地上並不少見,當中有些病人可能不會說英語,我們亦希望向他們伸出援手。

現時,香港雖擁有先進的醫療服務,更多對CLL 的臨床試驗亦將開始。然而,香港醫療界卻未有對CLL 作出深入討論。我們希望能夠接觸香港的CLL病人,以了解他們的需要,並將資訊傳達給他們。


1 Reply

If you are on Facebook, you might want to try the CLL Support Group. There are members from all over the world. I don't recall seeing any from Hong Kong, but that doesn't mean there aren't any there.

I live in upstate New York in the US. I am 61 and was diagnosed 2 years ago, but have had CLL longer. I have a 15 year old daughter, husband and 2 Schnoodle dogs. I am in Watch and Wait and have had many illnesses the last year that have been exhausting and worrisome. Currently, I am well and hope to continue this way.

There are other support groups on Facebook too, just search on Leukemia. But, the one I am referring to is run by Chris O'Donnell.

Good Luck!

Chris Weary

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