CLL America Support | HealthUnlocked

Has anyone been diagnosed with CLL and is showing a low T3 in thyroid testing? Ty in advance for help.

I have had CLL in w&w status for 18 months but with continued weight loss doctor started me on Calquence 6 weeks ago. No weight gain as yet. Does anyone have...

Have any CLL patients had Mohs surgery at MD Anderson? How was your experience? TIA

After waiting over a month my oncologist finally called to tell me I have the agressive form of this disease....CLL....he is looking for a clinical trial for...

I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I...

This goes quickly. I applied and received award news in ten minutes....

As i am writing this im very frightened And i need someone with similar condition My dad was diagnosed back in 2019 With CLL he did about 3 sessions...

Does anyone know what if any implications Poikilocytosis has on CLL?

Hi, After almost 3 months of testing, starting with University of MN Fairview & then Mayo, it looks like they are finally narrowing in on a diagnosis. The...

Hello, I live in Minnesota and was diagnosed with CLL in Oct 2022 and my oncologist at the Masonic Cancer Center put me on the O and V treatment which started...

I'm not currently in treatment, but anticipate I will be at some point down the road. I've been thinking about costs, insurance and asset protection and...

Anybody going through hairy cell leukemia?

I’m contemplating total knee replacement. My concern is that my immunoglobulins have sunk below normal range - but not low enough to start infusions. Has...

Is there a list of CLL specialist in the Philadelphia area.

help for cll

I was diagnosed with CLL in 2011. Recently I have had a dramatic increase in my white cell count, more than doubling within the past year to my current level...

I had Covid about two months ago. I've read that one should wait six months before getting the latest booster. Does that apply to someone with CLL? Thanks...

Is there any relation between high serum crp(9.585mg/dl) and stage 0 cll

I have had CLL for about five years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to...

Is unintentional weight loss common with CLL? My bf hasn’t had much of an appetite recently and he’s lost about 10 pounds without trying. He also gets this...

hi, my mom has had a persistent elevation of wbc, neutrophils and lymphocytes for the past 7 months, since diagnosed with diabetes. Asymptomatic and has...

I spoke with my specialist from Upenn today and she wants to switch me to pirtobrutinib once it receives FDA approval for CLL in a few weeks. My questions...

I live in East Texas. I just turned 80 and have 3 adult kids and 7 grandkids (3 out of college) 1 in college, 3 in high school. I was diagnosed with CLL In...

Hello from the SF Bay area Father of 2 (6 and 3 years), Happily married - Recently diagnosed with CLL (Sept 2022) Mentally and emotionally a mess There a...

I recently had a CT scan and the results say I have an inherited disease called Chronic granulomatous Disease (CGD) where white blood cell (phagocyte) that...

I am currently in treatment for CLL with Gazyva and Venclexta. I just was looking at my explanation of benefits and it looks like my copay for the Venclexta...

I just got some results from a comprehensive HEME panel. One of the items listed SF3B1 GENE at at a VAF of 40%. The only references I can find on this refer...

I got a false positive Covid reading which prompted me to get the Paxlovid. I also went to get a PCR test just to be sure - it came back negative - as did...

Has anyone got a similar result.. what best treatment did you opt for? It’s a desperate situation for us.. pls guide We Were on acalaibrutinib + Venitoclax +...

Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have...