CLL America from Patient Power provides information and support to individuals with Chronic Lymphocyctic Leukaemia.Read more
CLL in Rochester NY
g00dr1ch3 days ago
Hi - looking to start CLL Support Group in Rochester NY - ping me if interested - thanks
2 Replies1 Like
Venetoclax/Ibrutinib trial needing surgery
Louie_CC8 days ago
Hi, I have been on Ibrutinib for 6 months and added Venetoclax 2 weeks ago. My WBC is in range and my Lymphocytes and Neutrophils are within...
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Register now to attend our 2 webinars next week!
tclementi10 days ago
Next Wednesday: Are Clinical Trials a Gamble for Me or My Loved One?
Next Thursday: CLL Lab Tests: What Follow-...
ATTENTION CLL + SLL PATIENTS AND CAREGIVERS
LCAdmina month ago
Lymphoma Canada and the CLL Patient Advocacy Group (CLLPAG) is preparing a submission for the pan¬Canadian Oncology Drug Review (pCODR) for:
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Ibrutinib and Medicare
ReneeSusana month ago
I'm from NJ and have relapsed SLL - unmutated - as far as I know I don't have any the mutations that make the disease really high risk. My...
"Living Well With CLL: Treatment & Research News" Replays Now Available!
tclementia month ago
Attention CLL community! The replays are now available from Saturday’s town meeting in Denver. Hear our expert panel’s perspectives includin...
Just wanted to make sure everyone was aware of our upcoming CLL events!
June 21 -Clinical Trial MythBusters: Are Clinical Trials a Ga...
Is there anybody out there?
wwwarda month ago
Is there anybody out there?
Wonderful to discover such a site, so many members, to be given some support and hope
4 Replies3 Likes
Have You Had a Problem With Your Medical Insurance?
We recently interviewed Stacey Worthy of the Alliance for the Adoption of Innovations in Medicine about steps patients can take if insurance...
Replay for CLL event coming & cool advocacy opportunity!
Thanks to all in the CLL Community who joined us in person in Denver or online for this past Saturday’s town meeting. Jeff Folloder and the...
CLL Event this Weekend!
Wow! Over 300 people now registered for Saturday's CLL town hall broadcast from Denver. Over 100 will be there in person. If you can make it...
CLL Speaking Opportunity!
tclementi2 months ago
Are you a CLL patient with a p17 deletion on Venclexta and are able to travel? If so, we may have a speaking opportunity for you. If you mee...
Ninagram2 months ago
Still in the W andW mode. My WBC are increasing every appointment and my platelets are decreasing. Have enlarged lymph nodes sand a lot ...
Are you joining us next Tuesday?
We'll be breaking down myths about clinical trials and more! Learn more and register here: patientpower.info/event/myt...
Join us in Denver or watch online May 20th
For more info, see the flyer below or visit patientpower.info/cllmay20
Where Is The Cure Hiding & How Do We Get It?
Government cutbacks in cancer research: what will affect be on you and your diagnosis? Our founder, Andrew Schorr takes a hard look at curre...
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Get the Latest CLL info on May 20th!
Join Patient Power for a one-of-a-kind experience on Saturday, May 20, 2017 at 9:30 AM in Denver Colorado. Register now to attend our secon...
Q about boosting immune system
jfaction3 months ago
I am newly dxd with cll. I have stage 0 rai, but my cd38 was 86% which is scary; I was hoping for the mutated gene that indicates long stab...
I am cll patient. Diognoised in 2013 .
venk_463 months ago
Are cll patients susceptible to secondary cancer? As the lymphhocytes multiplyyand circulante thro out body and hide at various lymph nodes ...
Missed Our Webinar? Watch the Replay Now!
tclementi3 months ago
Understanding your complete blood count (CBC) results and staying up-to-date on new testing methods could help provide more information abou...
CLL diagnosis and diet
goodtimesman3 months agoPOPULAR
was Diagnosed with CLL a day after my 60th birthday party. I hadn't been feeling well for months. I was diagnosed with pneumonia, sinus infe...
20 Replies4 Likes
Share Your Story!
Are you currently on pegfilgrastim (Neulasta Onpro) and want to tell your story? This is your opportunity to help other patients by sharing...
Share Your Perspective In Our Survey
For the second year in a row Andrew has been invited to be a patient representative on the President’s Cancer Panel as it discusses cancer d...
New to patient power
Ninagram4 months ago
Diagnosed in 2008 with CLL. Have been in the watch and wait phase for 9 years. My WBC has doubled and I have enlarged nodes in the last 3 m...
Register for our Blood Test Results Webinar
tclementi4 months ago
Many patients don't understand their blood test results. Over 600 people have registered for our March 28th webinar to explain. You can join...
Take 5 Minutes to Share Your Perspective
Dear fellow patient or family member,
For the second year in a row, Andrew has been invited to be a patient representative on the President’s...
CD 45 protein in flowcytometry test
venk_464 months ago
can anyone in the group through some light on CD45 as bright in Flowcytometry test?
Is it good or bad prognastic indicator. I am mutated, n...
Canadian and UK CLL Patients Here? Speak Up!
andrewschorr4 months ago
Greetings CLL friends - especially those from Canada or UK - if you read this. We are often asked whether we know patients who would be will...
Join me in person or online for Town Hall Meeting Saturday
Forgive me if you already know about this, but I will host a LIVE town hall meeting from MD Anderson Cancer Center in Houston this coming Sa...
Cll 5 1/2
aoakes00015 months ago
Diagnosed with CLL 5 1/2 yrs. ago. I'm still in watch and wait. Anybody out there in the same mode? It is progressing but evidently tly not...
Have you watched our ASH 2016 coverage?
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