I have ovarian carcinosarcoma (1c). Starting ca... - My Ovacome
I have ovarian carcinosarcoma (1c). Starting carboplatin 9 weeks after diagnosis. Is that dangerously too long? No probs with hysterectomy.
Hi! Well done for finding this site. It's a great place to come for answers. If you google Ovacome there is a lot of info on the site there. This site is an off-shoot of Ovacome. There is also a number you can ring to get some answers from a nurse who has experiences OC. The number is 0845 371 0554 but it's only during normal office hours. They are brilliant on there and should be able to reassure you. I was told when I had my op that chemo would be at least after my six-week check up. I had 1c too, and in my case, when the histology was analysed, they found it was borderline, which doesn't react to chemo. So I didn't need chemo. I don't think 9 weeks is dangerously long to wait. However, I am not an expert, so check on the website if the info you need is on there or ring tomorrow to check with the nurse.
All the best
Love Wendy xx
Hello there ...
I have the same as you and at stage 1c ..
Finished my Carbo /Taxol in May ..but I was told by my Oncologist two days after having my results In Jan of this that I would need to carrry on healing in side after my Hysterectomy so I had to wait also to begin the chemo .
So sorry to that you have this nasty beastie but this is a wonderful site with lovely ladies that are so very supportive and helpful and very friendly too .
You are not alone now that you have found us xxxx
Any thing you need to know ask away . thers is always someone that can answer your questions ...
Take care now ..
love Janet xxx
I was also diagnosed at 1c. I had my hysterectomy on 7th june 09 and started my carboplatin on sept 4th 09. They give you time to recover from the surgery before putting you through chemo. I have been in remission ever since and am feeling better than i have for a long time. Good luck...i hope your treatment goes as well as mine did x
Hello
This is an anxious time for you and I'm sure everything must seem like something to worry about. Your timescales sound ok to me. I had my op about 6 weeks after investigations started and started chemo 6 weeks after surgery. I was stage 1a clear cell.
Since you were early stage as well did they tell you if they thought they had removed intact everything they suspected was malignant? Since you're having carboplatin only, like me, it sounds as if this is more a precautionary measure rather a case of chemo having a particular site to attack.
See what answers you can get the next time you see your oncologist and keep coming back here if you have questions or worries once the chemo starts.
All the best
Linda
Hello all of you,and thanks for replying. I'm feeling more at ease about the time before starting chemo, and more so hopefully once it's all over and done with - November sometime.
Love Pixinafix.
Hi, I also had the same diagnosis as you, had the surgery in Feb 2010 and started 6rounds of chemo carboplatin at the end of March 2010. Finished chemo in August, and had good results,been cancer free for nearly 2 years now,still have check ups every 6 months now.
Best Wishes Love Sue x
Excellent news Sue! It is so good to hear of such happy results as googling for ovarian carcinosarcoma seems to only bring back gloomy predictions. Are you now able to relax about oc? I was told I would have check ups every 3 months for the rest of my life - I'm 60. Are you able to forget about it between check ups?
Keep up the good work.
Love Pixinafix
Hi, I had 3monthly check ups at first but have now gone to 6 monthly and was told it would be for 5 years. I am 57 and try not to think about it too much, I keep myself busy , but it is always there at the back of my mind,I just try to think positively and get on with my life. When check up time is due i do get nervous but i think everyone does!Hope the chemo doesn't cause you too many problems, i was fine ,no sickness and didn't lose my hair because i was on carboplatin,just felt tired a lot. Hoping you will get happy results too,fingers crossed.
Love Sue x
That sounds good Suse. My anxiety about starting chemo is fairly high as there was a bureaucratic mix up for when I was supposed to start,which was last week. The scheduler assures me I've a slot on Friday, but no letter has arrived.
Fingers crossed about no sickness.
XChristine
Hi , Christine, Give the oncology department a ring , or if you have been appointed a nurse give her a ring,i always found them very helpful. I found the chemo not to be as bad as i thought it was going to be ,if that makes sense!! I was vey nervous for the first round, but it got easier as the months went by. Where are you being treated, I was at the Royal Preston hospital in Lancashire and they were all very friendly and put you at ease. Hope you get to start tomorrow, let me know how you go.
Best Wishes Sue x
