Niraparib questions : Hi all, My mum was on... - My Ovacome

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Niraparib questions

MissEd profile image
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Hi all,

My mum was on niraparib for 3 weeks (300mg) but then had a 3 week break due to low platelets. She has been back on them a week and her ca125 has risen in that week. I just wondered if anyone has had a similar experience. She is a due a scan next week but I do wonder if she should ask about waiting as surely the 3 weeks off will have had an impact on the result potentially?

Thanks and God bless

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MissEd profile image
MissEd
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Cascabel profile image
Cascabel

Hello. I'm on Niraparib since June 20, 16 months. My Ca125 did not got up when niraparib stopped but I have read many times that ca125 can go up for many reasons , a cold an inflamation, a virus, etc. First weeks wth 300 mg my platelets dropped and had to stop for 2 weeks. Restarted with 200mg and everthing is ok but bloodpressure is a little up and I have 1 tablet of "enalapril" (name in Spain) 3 times a week.Also I have a little insomnia sometimes. I am very happy because Niraparib is working very well and my Ca125 is very stable.

I wish Niraparib works also well for your mum.

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