So after joining the double blind trial for Olaparib at the beginning of January 2014 I have today been told the trial has been completed and unblinded and that they can confirm that I have indeed been on Olaparib, which was indicated by various side effects and the shape of my blood cells lol. This is my third trial, albeit my first double blind trial. To say Im actually ecstatic is an understatement. If Ive helped one person its been worth it, lets face it its not like I havent benefitted too! Nothing will change for me as they still want to collect the data . If I had to take part in another trial I would in a heartbeat. My greatest wish in all all of this is that others benefit, now and in the future. xx Kathy xx
Olaparib - its official!: So after joining the... - My Ovacome
Fantastic! Bless you Kathy for thinking of others as well 💕xx
That's fantastic news! Cindy would be really happy about this!! Xxx
That’s great to hear, Kathy. Thank you for contributing to the well being of many women.
Best wishes from Louisiana
An achievement, indeed! Well done and many congratulations. Keep going strong and in full remission. Do you take any supplements with Olaparib to help with its common side effects and most importantly boost the blood/anemia, and fatigue.
Hi, Ty for your kind words. I dont take any supplements, just prefer to eat healthily. I'm lucky in that whilst I get tired at the end of the working week I dont really suffer too much with fatigue and my bloods are always good. I never underestimate how lucky I am xx
Bless you! Excellent news - it is not just luck. You are doing something right - Keep going xx
You have done so well on this drug Kathy and long may it continue for you. I am hoping that Rucaparib will do the same for me when I start it in October after the completion of chemo.
Thanks for doing it! I would also participate in any trial if offered.
Thank you Kathy. Wonderful news and after all these years great to know you were on Olaparib (although you probably knew this). As always an inspiration for us all with your updates and positivity x
Did you doubt at first if you were on the real thing? I can imagine it must be quite worrying to think you might be taking a placebo.
I've followed your story since I joined, you must feel blessed. Are you to still take Olaparib?
All the best
No to be honest Helen a few weeks in both the Consultant and I were pretty sure I was on Olaparib. This is my third trial, the second double blind one (where neither I nor the Consultant knows if I am on the drug. I am still to take it, nothing has changed. They now want to follow me to see how long I an continue on it and what the long term side effects will be (if any). I do indeed feel very blessed and EXTREMELY lucky. Thank you for your good wishes xx I hope you are doing well. xx Kathy xx
Fabulous news, well done 👍🏻
Still my role model (albeit on Niraparib!!) xx
That’s super, Kathy! You have been amazing. It’s excellent that you’ve been on the drug the whole time. It gives great hope to me and anyone else taking it. You’ve helped, and will continue to help, hundreds, maybe thousands of women.
Well done! Keep up the good work!
I’m full of admiration for you!
Very well done, Kathy - you are amazing and I am so very happy for you - wishing you permanent remission, great health and quality of life - you’ve earned it ⭐️💕💖. Love from Mel xxx
That's brilliant news Kathy and you've helped so many others at the same time😍
What fantastic news!
Shedding tears of joy for you xx Jaki xx
This is great news all round. Firstly the benefits the drug has brought you - so deserved. Secondly all the other ladies who will benefit from your willingness to be a pioneer and join the trial. Thank you and wishing you continued good health.
Thank you Kathy for being a brave guinea pig! I am so pleased it worked so well for you and very hopeful that it’s sister Rucaparib will work as well for me. xx
Wonderful news xxx
Wow Kathy, that’s fantastic news. Your journey gives us all so much Hope xxx
Hurray! I love hearing your news. Xxx
Such wonderful news.You are a great inspiration to me.I started Olaparib 4 months ago now and feeling really good.I hope that we all continue to do well on these drugs.
As always Kathy you are an inspiration. I hope I can follow in your footsteps. I too tell others that I feel lucky to be on Olaparib (and Cediranib). I didn't actually realise that you didn't officially know that you were on it. Have they told you anything about the general results for the trial?
I never officially knew but my Consultant was 99% sure given side effects and odd shaped blood cells, theres a name for it but its a mecical term I cant remember lol. The results from the trial have been published and from what I can tell are really good. If you search SOLO2 then you can read the results. Makes for good reading.
Thanks Kathy, I've just read these results and Olaparib truly is a great drug. You should be very proud of being part of this first completed trial into long term use of a Parp drug. There is so much rubbish going on in the world at the moment and on top of that we are battling this cruel disease. Your news today brings us ladies hope that science is working for us like never before to give us more of a fighting chance. You really are a pioneer Kathy.
Sending a grateful hug
How are you finding the combination? I trialled Cediranib after my 1st recurrence.
After 5 months the upset tummy was proving too much and I was losing weight. My consultant told me to have 2 days off the Cediranib per week and that has made a huge difference. I've got very mild neuropathy of late and feel extremely tired some days but that's usually because I've been feeling fine and have overdone it! I feel lucky to be on both tablets. They're doing their job and holding the disease back. I'm happy with that.
Well done you. Result you were on the actual drug too😀
Great news Kathy. Best wishes, xxx
That's absolutely fantastic x
This is fantastic news Kathy. Very well done for being a brave volunteer. I’m so glad it’s worked so well for you. Long may it continue to do so. xx
I'm so pleased for you, hope you continue to have this success. Suexx
Thank you Kathy .xx
Well survive 5 years already a good thing. Are you braca? Cobgrats
Im actually in my 13th year (anniversary in October). Yes I am BRAC2.
Well done Kathy that's great news. It gives us all a lot of hope. Kath xx
Wonderful news Kathy, keep taking the drugs lovely ❤️Xx Jane
Oh my, yes, it has to be exciting to find you were getting the tested drug! Let us know your results!!
Great news Kathy, you have been a real inspiration to me ever since I joined the forum over 4 years ago! Thanks for encouraging so many of us.
Love Barbara xx
That is fantastic news. You are an inspiration xx
Hi Kathy, so chuffed to hear your wonderful news! You inspire us all on this site. Going in for trials which help benefit others and offering advice from your experiences give us all hope. Thank you
Fantastic news Kathy, it’s inspirational you are giving people hope.
Hugs Ellsey xx
Great to hear Kathy.
You have inspired many of us on this forum- not only because you’ve been willing to trial treatments but because you respond to posts and questions in such a helpful and positive way. You are always so empathetic and caring.
Thank you .
Super👏👏👏wishing you continued good health.
Meant to message a few days ago. You are such an inspiration to us all. You gave me hope when I first went on olaparib. I've been on this for 7 months now and all good so far with very little side effects.