Anxiety to the max
Its 4days till i see a gynacologist oncologist ... - My Ovacome
Its 4days till i see a gynacologist oncologist under the 2 week rule after finding a 5cm cyst on ovary what can expect ? Sorry for posting
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Trossyann
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43 Replies
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Oh my darling there are so many possible outcomes. Have you had internal and external scans and CT , it depends on what you have had what happens next . I was told I had a large complex mass after scans , the C word wasn’t mentioned until after the CT , l suspect they knew by the numbers on my CA125 . It’s very hard to wait but you have to There is no choice , I pray that this is just a cyst but you do have to prepare for some sort of surgery at least whatever it turns out to be .I will be thinking about you .Julia xx
Thanks for your reply juleswhee i had a ct scan after a previous op and a cyst was found was sent for a transvignal scan and c125 dont know results just got a letter to see a gynacologist oncologist . I cant think straight anymore i have a first grandchild due in December and i just cant help thinking i am not going to see the baby .
When I felt ill last year my first grandchild was five weeks from his due date , I kept quiet for three weeks , I couldn’t have said anything I imagined the worst outcome for my daughter , premature labour and worse.I found out I had Cancer on 9th March 2017the day after my husband retired from work and two days before the wonderful Frankie was born .He really is my saviour , you will get to love your grandchild too , keep us posted on your outcome and if needs be remember we are here for you every step of the way , good or bad xxJuliaxx
Aww bless you juleswhee i hope you are doing well and can i say congratulations on little frankie i bet he is spoilt rotten xxx
My first grandchild was called Frankie, he was 8 months old when I was diagnosed, I am still here and he starts school in September, there’s always hope.
Carole xxx
We all feel like this love, I had my first grandchild that was 8 months old when I was diagnosed and he had to be put in full time nursery because I couldn’t help with childcare, I felt so guilty and emotional.You will be there, I still am and he starts school in September, I also have another grandchild aged 15 months.
There is life after all this s..t and you have to look forward to it.
You will get through, the waiting is the worst, we are all here for you,
Best wishes,
Carole xx
Hi Carole
Thanks so much for your reply and great news that you have to beautiful grandchildren. I feel like i am such as nuisance posting on here but its the only time i feel abit better i dont like talking to the family because i feel so dam guilty i just want to cry alot i am so scared to go and see the gynecolist oncologist on thursday i am making myself ill . Thanks again carole
A grateful Tracey xxx
Hi Tracey,
Never worry what you post on here, we have all been there and if you can’t talk to us, who can you talk to?
Making yourself ill won’t make it any better, what will be will be and the wait is the worst.
I am a terrible coward, but you will be surprised what inner strength you can muster and let’s not forget, you are thinking the worst and you don’t know the outcome yet.
Try filling your days with things you like doing, even a walk or trip to the sea will help,
I wish you all the best,
Carole xx
Hi Carole
Thankyou so much for your reply it means so much , i just think god i am such a whimp and all you ladies are so amazing . I thought i was a strong person but i feel that i am a weak person at the moment . I have diagnosed myself before i even know i just panicked when i got the letter to see a gynacologist oncologist.
Yes your right i live right by the seaside so thats what i am going to do . I really appreciate you chatting with me .
Tracey xx
Don’t be sorry.....you are worried, everyone here gets that and will want to welcome you to the club no one wants to join. Don’t expect too much of this appointment..they will probably take blood, order a CT scan and take a medical history. They may not tell you anything and they certainly won’t commit to a diagnosis until they have evidence.
You could ask things like...what are you testing for? When am I likely to know what’s wrong? Who do I contact if I have questions or if I start to feel worse?
Take someone with you if you can because it’s hard to remember what was said if you are stressed.
Best of luck...do ask anything on here, we are here to support each other xx
Hi lyndy
Ive already posted a few days ago i just feel like a nusinace but talking to all you ladies makes me feel so much better . My story is a had what they called a major surgery on a hernia in January had a ctscan of abdomen and pelvis with contrast in may which my surgeon said picked up a cyst had a transvignal scan and c125 dont know results was sent a letter saying i had a appointment with a gynacologist oncologist which was a urgent referral so i know i have a cancer otherwise they wouldn't of rushed it so scared lyndy just want to see my first grandchild in December thanks again for replying xxx
Hi my lovely,
Easier said than done but please don’t worry until you need to. When my special person was diagnosed she was told ‘you’ll live 6 months with chemo’ (the actual words of her surgeon) so she started chemo and saw the surgeon 6 months later for a hysterectomy (he was shocked to see her there still alive) that was March 2015 her surgery was November 2015 she’s still here in July 2018 she’s had 2 reoccurrences so far and is kind of on her 3rd reoccurrence now so over the next few months will be starting 4th line chemo she didn’t think she’d see her granddaughter start secondary school let alone hit her 60th (coming up in September) as bleak as things are at the moment there is always light at the end of the tunnel xxx
Hi
My mind is in overdrive thinking of everything i cant stop thinking i dont know what i have yet just know i have to see a gynacologist oncologist on thursday and i am so scared because i love life so much and want to see my sons first child in December. I am so pleased to hear your special person is still here thats fantastic news . Thanks again for the reply just need abit of reassure i think as daft as it sounds xxx
Try not to borrow trouble, Trossyann. Keep focused on that gorgeous child that's coming into your family in December. Thoughts like that will fill your body with good feelings.
Keep us posted.
XXOO
Thanks for reply nancy i am trying so hard i just dont know what to expect on thursday i am panic stricken i want to see my first grandchild so so much and beable to have him or her on sleep overs At mine but dont know if i stand a chance XX00
It's difficult, I know. Remember to breathe when you're at your appointment. Will someone be going with you to take notes or just to be with you?
Yes, I've been through this several times. Sometimes the information is too much to handle, so I blank out for a few seconds. But it's okay because my husband is taking notes.
There are also times when I have tears running down my cheeks, and that's okay. I wish I could be stoic through the appointment, but I figure the doctors are used to it. It's such a stressful time for us. So if that happens to you, just know you're not the only one. And it's okay to say that you need a minute to compose yourself.
Also, don't be afraid to say, "What does that mean?" Sometimes the doctors forget we're not versed in medical lingo.
Know that you've got all of our support behind you. You can do this. There's a grandbaby in your future 
And your news might not be as dire as you think.
Big cyber hug.
Aww bless you nancy i hope you are doing well now and it helps talking to ladies like you i really mean that . I cant believe how 6 weeks ago my son told me i was going to be a grandmother. Was over my surgery i had in January had a ct scan of abdomen and pelvis with contrast in may then was called in june told they found a cyst on my ovary went for transvignal scan and c125 dont know the outcome of them just know i have to see a gynacologist oncologist which was under the 2 week rule i am 51 and postmenopausal so i persume it cant be anything else other than the beast . Thanks again nancy Xxoo
I was referred under the two week rule. I saw a gynae consultant who ordered bloods, carried out an ultrasound and internal examination. Asked about family history and gave me an operation date to initially have a TAH but then changed it to key hole to remove a cyst, tube and ovary due to the fact there was a 95% chance of it being a simple cyst
It’s a very straightforward appointment so try not to worry
LA xx
Hi lily-anne
I am so scared right now the cyst was picked up on a scan in may i had as i had a operation in January. Ive and a transvignal scan and c125 then i got a letter to see a gynacologist oncologist in the 2 week rule i am so scared lily-anne that i am not going to see my first grandchild in December.Thanks for the reply
A grateful Tracey xx
PS I dont think i would of be so worried but it looks like my bloods were probably high i god knows what the transvignal scan as showed to have to go in to weeks . Did you or do you have oc Lily-Anne ? You have made me feel better with your reply thankyou xx
The two week rule was introduced to start the ball rolling, otherwise you can wait months, the gynaecologist will then decide if it's urgent or not. It's better for you as they can book you on their operating diary there and then. No room for error.
I do have OC, my diagnosis was in 2012. I saw the consultant in August and had my cyst removed in the September. Stage 1.
Please don't worry that it means really bad news, most people survive at least five years after diagnosis, and you still don't know if it is cancer or just girl stuff. Fibroids a cyst or similar. Theres a worry that as soon as you say cancer your number is up and that just is not true.
xx
Thanks for the reply lily-anne
And i hope you are doing well . I have to see a gynacologist oncologist which is why i am freaking out so much . Did you see a gynacologist oncologist under the 2 week rule with your cyst ? And i was told by the lady who done my transvignal scan it was a 5cm and she didnt know if there was anything nasty there but when i got the letter for a gynacologist oncologist i just thought ive got cancer . If i had been seeing a gynacologist without the word oncologist i dont think i would of been so scared thanks again for taking time to reply
Tracey xx
Yes it was a gynaecologist oncologist, they usually do both, got to be cheaper than employing two separate people. Only histology will tell you if it's cancer, that takes about two weeks after surgery. Make some plans for what you will do after the result, one for good news and one for bad, otherwise you will feel a bit lost.
xx
I expect that you will get the results of the CT scan and your CA125 at your Gynecologist appointment. As an oncologist is a cancer specialist that must be what they suspect. But Cysts can also be benign and they cant tell what type of cyst you have at the moment. Your Gynecologist will probably discuss your scan and explain about the MDT ( multidisciplinary Team) these are a team of professionals - surgeons gynecologists nursers etc who discuss your case and come up with the best possible treatment plan. I strongly urge you to take someone with you as when I had my first appointment it was like i was deaf and dumb, the shock and disbelieve messes with your head big time. All the very best for the appointment and try not to worry.
Lyn x
Trossyann• in reply to
Hi lyn
I didnt have a ct scan i had one in late may relating to a operation i had and a cyst on my ovary was picked up so i had a transvignal scan and c125 2 weeks ago and then i got appointment to see a gynacologist oncologist i am so scared there is no treatment out there for me and i want to see my first grandchild so so much . Thanks for your reply
A grateful Tracey x
• in reply toTrossyann
Hi Tracey of course you are scared but i really think you should wait and see what the oncologist has to say, for me the waiting was the worst part of this horrid journey, my chemo started last Friday and although I am dreading chemo I am relieved that after 9 weeks tests scans etc etc treatment has started. Once they have a treatment plan for you things move very quickly, and there is absolutely no reason you will not see your first grandchild - believe it!
Lyn x
Trossyann• in reply to
Hi lyn
Thanks for the reply again it is much appreciated . How areyou doing on the chemo ? I am realky scared of chemo but if it fights the beast i am all for it. Are you from England lyn? I am im from a town called hartlepool not alot of people havr heard of it . I admire people like you i really do i just feel so alone right now but coming on here gives me alot of hope
Tracey x
My grandparents met in Hartlepool during war - my nana’s family from Murton - once you see the gynae onc you’ll have a better idea of what’s happening - of course you are worried and if it is cancer you’ll worry even more but you do need to believe that you’ll still be here in December even if it is cancer- none of our futures are a given so try and live for this moment - in the early days of my diagnosis I found it better not to google or read forums tbh as you get caught up in the terrible what ifs - take care x
Wow your grandparents met in hartlepool someone who as heard of hartlepool lol . I know what you are saying i am a mess right now my nerves have definitely taken over . And have goggled alot trying to tell myself is there a slight chance it may not be cancer and i am caught up in them what ifs . Thanks for your reply
A grateful Tracey x
• in reply toTrossyann
Hi Tracey I am in the southeast Kent. Chemo was not to bad only had one session so far, but was not as bad as I had imagined. The fear of the unknown got to me and I seriously considered not putting myself through it, but my adult son said "what's the alternative"? point taken! I am the biggest wimp I know and if I can summon the courage so can you. All any of us can do is put our trust in the professionals assigned to us and take one day at a time.
Lyn x
Trossyann• in reply to
Hi lyn oh miles away from me then and i am pleased your chemo wasnt to bad . And the fear of the unknown is terrible i have had many thoughts not to go to this appointment. The funny thing is lyn i felt fine up until two and half weeks ago till i was told about this cyst . I dont know whats worst knowing or not knowing . And yes your son was so right thats what my two sons say you are going thanks again for taking the time to reply take care lyn
Tracey x
Hi Tracey! Please try not to get ahead of yourself. Lily-Anne has given some excellent advice. I'd just like to say I was in the same position as you, referred to a gyneoncologist. My tumour was 22cm. And I had a Ca125 5 times normal. You need a gyne-onc to say what isn't cancer as well as what is, so lots of people are referred and it all turns out OK. Like me. (See my profile. Click on my name.) I was just like you and thought I'd never see another Xmas. I was so anxious I couldn't eat and my lovely GP gave me some valium and put me on a low-dose anti-depressant, which helped a lot. It might take weeks to find out for sure. That's a long time to waste worrying about possibly nothing so do get help if you need it. And stay away from Dr Google!
Best wishes,
Sue
Hello sue
Sorry i have just seen your message can i say thankyou for your reply .i seen the my gynacologist oncologist and my bloods c125 was normal but my cyst is a complex with solid areas she is taking my overias and fallopian tubes out but because i have mesh she as to check with my other surgeon to see if i can have keyhole if its another open surgery she is going to do a hysterectomy . Then she will do i biopsy om the cyst its 5 to 6cm . I am really pleased you are doing so well Decca4ever .
A grateful Tracey x
Good luck with your surgery. I had a vertical incision because the tumour was so big. It's a longer recovery, but they do get the chance to have a good look round. I was out of hospital after 3 nights and could do everything I needed to do - just more slowly. A good excuse to lie on the sofa and binge-watch DVDs with a clear conscience.
Fingers crossed for you!
Sue
Thanks so much sue
