Pusaltile tinnitus

Has anyone else suffered from pulsatile tinnitus since having chemo ?

[Janet235]

Had to look that up ( matching or related to your pulse...). No, but I have got random tinnitus -now I am on third line weekly chemo - which I never had before. It manifests itself as a metallic clinking which comes and goes fast or slow, soft or loud, then disappears. I wonder if it is because both my ear and nasal passages are thinning? Opening up? I do suffer from daily rhinitis as well but that is quite common....

Hope it doesn't bother you too much, just another bizarre symptom to add to the list! 🤔

Janet 🌈

[Hidden in reply to Janet235]

Chemo obviously does cause random side effects. Different ailments for each of us. Rhinitis is one that is annoying isn’t it.

I’ve been trying Phenergan which is helping with permanently runny nose.

Helps me sleep too as I’m rubbish at that !! Xx

[ZenaJ]

Not sure if it's the same thing but I've definitely had noises in my ears and floaters in my eyes amongst other things. I'm not sure if I've had some of these things before chemo but since chemo I notice every little thing now and put if all down to chemo.

Best wishes, Zena x

[Hidden in reply to ZenaJ]

Floaters probably need checking out. Might be worth an eye test maybe.

Definitely notice more ailments since chemo !! X

[ZenaJ in reply to Hidden]

Thanks Laurel,

I had my eyes checked when I finished chemo. The ophthalmic optician didn't seem to have any concerns. I find it annoying at times though. I've even thought it was a spider once or twice and that was horrific.

Best wishes, Zena xx

[Alifit]

I have had tinnitus for a long time now, I find it worsened during chemo and now Avastin. I have always found that it worsens after alcohol so I assume that in my case it is to do with poisonous substances in my body! My tinnitus is not overly troublesome so I have no plans to give up either the cancer drugs nor the alcohol!!

Obviously run it past your Consultant, but otherwise I hope it's not unbearable for you. Best wishes, Ali x

[Hidden in reply to Alifit]

That’s not great if you were suffering before and now it’s worse.

Shame the alcohol doesn’t ease it. I was hoping you’d say it does !! Xx

[Irisisme]

I have tinnitus now which I never had before my diagnosis. It is not like my heart beat but more of a whistle. If you're hearing your heart it could be a sign of high blood pressure, so you need to make sure this is checked.

Iris xx

[Hidden]

Thank you for your replies. Seems like chemo has a few lasting side effects doesn’t it.

My blood pressure is fine. It’s only in one ear but frustrating. I have app with ENT coming up but from what I’ve read there isn’t anything that can be done.

I listen to music with earphones and have a pillow speaker. It’s my heartbeat I hear. With a whooping noise. It’s ok until it’s quiet. Keep hoping one day it will just go!!

[HogwartsDK in reply to Hidden]

Hey Laurel,

I have the exact same thing and I blame chemo as I didn't have it before hand. I did see an ENT who said there was nothing else wrong and there was little they could do. She did prescribe a nasal spray and it helped a little bit as I sit here now typing it'sthere.............I try to ignore it as much as possible and it doesn't keep me awake or anything. I don't like silence any more and tend to have something on at all times radio/TV etc just to distract me from the heartbeat noise in one ear (it's the left for me! Chemo also left me with Osteopenia but dya know what I am 2 years NED now so I am happy to put up with those issues! Hope you find something to help!

Dx

[Hidden in reply to HogwartsDK]

I didn’t suffer before either. Just the one ear. Pounds in my head on the left side. I have seen ENT once. Have got the spray. Another app in November. Not holding out for any cure.

Like you I try to ignore it. Have to have sound all the time. Miss quiet times. Night worse. I was really hoping someone here may have found something that helped.

But like someone else has said - so many side effects that are much much worse. I can learn to live with this. Xx

[85live4ever in reply to HogwartsDK]

Hi D, that's brilliant 2 years NED!!! I am so sorry to hear you are surffering with osteopenia. Is that thinning of the bones?

As for tinnitus I always have the radio or tv on. It's night time that drives me mad. Good luck on years of NED😀 Take care Cindyxx

[85live4ever]

Hi Laurelsx, I have suffered with tinnitus for many years before chemo but now it's unbelievably bad. I don't find anything helps its so loud it gives me a head ache. I have mentioned it to GP many times before cancer & now 2 & a half years later. I have never been told there is anything that will help. I hope as time goes by it will get better for you. Take care Cindyxx

[Hidden in reply to 85live4ever]

I’m sorry you have suffered for so long.

It’s just finding ways to deal with it isn’t it. I’ve had 9 months since chemo finished and have been clear so far so I will just accept this is one of the long term side effects. Xxx

[85live4ever in reply to Hidden]

Hi Laurelsx, I am glad to hear you have been clear for 9 months. Good luck on a very very long remission.

Sadly side effects from chemo treatments are very common. I find the more quiet it is the worse the tinnitus. I was told to eat porridge or milky foods before bed but it hasn't worked for me. At times its like having a very loud waterfall in my head. In the left ear it sounds like a helicopter & in the right it's like having a buzzing bee in my ear. I was given hearing aids but when I took them out at night the noise was crazy!!!

Chemo has a lot to answer for but if it keeps us a live then we have to learn to gin & bear it. Thanks for posting take care Cindyxx

[harpist_UK]

While on GemCarbo I had pulsating noises in my ears which seemed to match my heartbeat - it was worst first thing in the morning when I woke up, then it settled. It has disappeared now I'm off chemo. It wasn't loud - just a bit creepy!

[Hidden in reply to harpist_UK]

It does feel creepy doesn’t it. Especially when I exercise and it’s quiet. Feels like my head will explode. I’ve learnt now to put earphones in when heart beats gets faster !!!

So glad yours has disappeared. Xx

[MH500]

Yes!! I have it, I’ve put it down to Avastin. It’s so loud, especially at night. X

[Twinie2 in reply to MH500]

I have it too... from the platinum drug carboplatinum. . Ent surgeon says it is permanent damage. I have a sound machine in my room for the nighttime when it's so quiet..helps greatly. Don't notice it in the daytime because of all the ambient noise,

[Hidden in reply to MH500]

I’m not on Avastin but you are right - so loud at night. I now have a basket by my bed with different types of things to amuse my ears when I wake up !!! Xx

[Maxjor]

I had tinnitus before chemo and during chemo--especially platinum chemo, it was an orchestra of noises--some I hadn't heard before. As the drugs wore off, the tinnitus got less emphatic, and the cycle began again with the next infusion. There is nothing they can do and I found the best approach is mind over matter. Works for me about 90% of the time. Other times I just listen in disbelief!