Risendronate first day tomorrow.

[Raleigh59]

this is my third effort on oral bisphosphonates. It went ok I guess better than the others, but I will find out Thursday if my new endocrinologist wants me on something stronger.

[Kingsdaughter1]

I was on Risedronate several years, for two years and went off but back on a couple of years later. I didn’t seem to have any side effects however my last bone density scan showed bone loss but only in my spine. It was severe enough, -3.3, to put me on Forteo. I only began a couple of weeks ago and am having no side effects but it is too soon to tell if it is improving my spine bone density.

[accuneedle29]

Good luck on your journey to better health.!

[Southerngirl2787]

Is it weekly? Still doing okay? My Endo flat out told me they may "hold the line" on my issues, but would not increase anything. That was when I had the one fracture at T7. After the other six, she's telling me they are useless for the most part....and wants me on Prolia after Tymlos. That's a hard no. But I've gone a month without another fracture...maybe the Tymlos is working.

[Raleigh59 in reply to Southerngirl2787]

Maybe it’s working.

Tymlos and Evenity are the fastest acting. I went to a lecture and the man said for severe osteoporosis ( which I have) I have to do Tymlos or evenity. So I will tell my dr that. And the man gave me charts to show the dr.

[Raleigh59 in reply to Southerngirl2787]

I’ve heard what works is a multi factor effort: supplements, medicine, exercise, positive attitude, low stress, healthy balanced eating, weight bearing exercises, tonight I watched an expert who said extension and not flexion exercises. Don’t do sit-ups! Do this - lie on stomach , arms at side and lift head and shoulders up. That’s extension and supposed to hugely prevent fractures.

[Southerngirl2787 in reply to Raleigh59]

I believe in the well-rounded approach as well. I refuse to be defined by these fractures...so I stay positive, reduced stress by rarely watching news of any kind, and keeping a healing mind spirit going. I worked in healthcare 30+ years, so I've seen miracles, and know folks can heal. Absolutely no sit-ups, I've had three rounds of PT through my four fusions, and learned a lot about doing the most with your body without hurting it. Extension is very good for the back...I've finally been cleared to do a few of my exercises, and added back my one mile morning walk. Already feeling better. Getting out side in the sun heals as well...even with the Lupus, I get out, tell my body to adjust to the sun, get over it, and start sweating! I just can't yet agree to any type of bisphosphonate. So little clinical information on safe long lasting positive results. So many stories of folks getting no where on them.

[Raleigh59 in reply to Southerngirl2787]

yes well I believe the bisphosphonates largely makes it so people don’t get worse

[Raleigh59 in reply to Southerngirl2787]

I tried the daily risendronate. I took one. Then I went to a lecture online that said doing the bisphosphonates makes the anabolics less effective. And this person suggested evenity as most productive.