Hi guys , I'm finding it desperately hard to remain positive, I'm so miserable and sad for my husband ....I do nothing but cry. We naively thought that Chemo then the surgery were the hard part but the mountains to climb just get higher and higher. The constant "dumping " syndrome and the stricture from the scar tissue is a nightmare. Just had a 2nd balloon down to stretch but after only two days he's vomiting again as food is getting stuck as bad now as it did with the tumour! If anything it's worse ! The only period of time we had a "normal" life was after the Chemo when the tumour had shrunk.
We just can't seem to get anywhere.....and Chemo is due to start in a week for 9 weeks solid ...it's already been postponed because of the "stretch" He does everything hes told ....eat slow , soft diet ,chew well .....how will he ever get strength back ..or cope with the Chemo ! So worried. All he can manage still is soup and very little else , how do you ever progress to eating more solid food.?