PLEASE HELP ME ANYONE: has anyone had... - Oesophageal Patie...

Oesophageal Patients Association
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PLEASE HELP ME ANYONE

has anyone had swallowing difficulty caused by an infusion such as infliximab or inflectra? I've suffered for 2 years and its HORRIBLE

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We need much more detailed history please before we could comment.

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im not sure what else to say other than the infusion was rushed thru faster than it was suppose to be and i had an allergic reaction to it which caused breathing issues, rashes and hives, bad eyesight and lots of other side effects. It took me 5 months to convince the doctor to investigate it because she said it was anxiety following my infusion which i have had for 2/3 years prior to that moment i had the allergic reaction ( which i never have suffered from anxiety before ) she ordered the barium swallow test for me and then lied about the results saying it came back as clear. I didn't find out the proper results until i was moved over to adults hospital, this is when my new doctor told me that the test actually showed i had slight dysmotility and recently i payed for all my results to be sent to me in person and my barium swallow says that i have a curvature in my throat, it also says that i have acid reflux, it also says that my swallow is incomplete and i double swallow and it also says that when i would swallow the barium, it would stay on my tongue for a minute. The hospital refuse to listen to me and they have for 2 years now and I've recently been told I'm getting a feeding tube. In my notes my doctor says i cant swallow because of anxiety but in person she says she's not sure and when i ask her about her saying its anxiety in my notes she will never talk about it and she starts saying that she thinks its nutritional weakness. Im literally at a loss of what to do because the hospital have tormented me for 2 years and refused to listen to me, even to this day they still refuse to listen; Because of the lack of intervention from them i believe I've development some mental health issues about swallowing so for about 3/4 months I've been seeing a CBT Therapist and so far it hasn't done anything for my swallowing function so my therapist is starting to elude to it being a physical issue and not mental ( i say she's starting to think its physical because my doctor still won't say whether its physical or mental even tho i beg for an answer ) thank you for your time reading this and i hope to hear back.

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