Does anyone else have this issue? I had the PEG-J put in earlier this year and am feed solely through this with Nutrison concentrate. My stomach is severely damaged and the feed by-passes it to go directly into the jejunum. The site is oozing bile all day and night causing severe burning to the stoma and the skin for about 3 or 4 cm's around the site. I use cavilon cream to help protect the area but this has little effect. My skin often bleeds because of this and the pain is intolerable. The Doctors have little idea as to what to do as my situation is not at all common and they haven't come across this situation ( in New Zealand). I have tried fitting a tube to the stomach part of the PEG to help drain it which only helps minimally as the amount of bile produced is, to my mind, excessive.
Any input will be gratefully received. Many thanks