Any Chronic Myeloid Leukemia patients that are also post Ivor-Lewis here?

[Trudivo]

Hi all. My husband is 4 years post Ivor-Lewis on Monday...yay! Unfortunately, he has had one thing after another since. Had several pyloric stretches, and then surgery to open it permanently in 2019, and then 2 months ago had surgery to correct a 1.5 foot intrusion of colon into his lungs, due to “creeping” through the hiatus since he no longer has a stomach to keep it below the diaphragm. Healed from that, but now diagnosed with chronic

[Fizzy35]

I am sorry I don’t have knowledge or experience to offer but I can and do offer my understanding as a carer dealing with Oesophageal cancer

This is a wonderful site with many different Ivor Lewis experiences and I am sure somebody in some country somewhere will offer you some well tried advice

My own solution is when you deal with professionals at ALL levels is keep asking and I truly hope you do

I would also ask that you take very good care of yourself as you are a much needed and I am sure am much needed partner

Best wishes

[Trudivo in reply to Fizzy35]

Thanks for your words of encouragement, Fizzy. This community was so helpful with tips when he was first diagnosed with the esophageal cancer, I thought I’d just try.... Dealing with the lifelong changes after that op is so daunting, and I am so impressed with all the survivors here!