Stage 4 lower/esophagus upper stomach cancer

[foxy62]

Iam really lost and confused.Started radiation in jan2019,then chemo feb/2019.Started hercepton june 2019.I have her 2 positive which allows me to have herception.I live in b.c Canada.Wondering if anyone out there is having same treatment.Ongologist says in opperatable .Any suggestions or advice please

[Wojtek123]

Hello foxy62, I the same junction cancer but with mets to the liver instead of the lungs. This was stage 4 also inoperable at the time. I was also HER2+. I was given chemo plus Hercepton, no radiation. The Chemo was Folfox. The after 4 sessions of chemo the tumors shrank almost to none. the concer then became operable so I went to surgery. Had an esophagectomy in Oct of 2017. Have been NED since. I felt a big difference after only two rounds of herceptin. How is yours working? Hang in there.

[foxy62 in reply to Wojtek123]

Mine mets to liver,lungs and lymph nodes,stage 4.I had radiation chemo, and now hercepton.Chemo was Capecitabine,oxaliplatin,trastuzumab.Some of the tumors have shrunked but the main tumor is inconclusive hasn't grown at present.I don't feel any difference with Herceptin.I am still very tired.Hoping I can have surgery down the road.Iam only 56 and cant stop thinking about dying.What are you eating to try to help.Ihave no nausea,and have put on weight.Thank you for replying.I live in Canada

[Wojtek123 in reply to foxy62]

Hello Foxy62

I can eat most anything but stay away from high sugar stuff since tumors like sugar. i also started to gain weight but stopped because I read somewhere that cancer also likes to have an abundance of energy. I can get dumping if I eat fast or large amounts, I am weight stable at 165lbs but feel I could lose another 8 lbs or so. Outside of that i take a multi and iron pill,plus an omeprozole and ranitidine once a day, an acetomineophen when needed. I'm in the Chicago Ill area

[foxy62 in reply to Wojtek123]

Iam also on Ranitidine,,Dexilant,EscitalopramPregabalin 75mg at night 10mg in am.Amitriptyline 10mg at night,Clonazepam 2mg at night.Escitalopram 10mg in am,lorazepam 1mg at nihgt,Dexamethazone 4mg in am,sennnosides 5 2x daily.I have gained 30 lbs since nov/2018.Iam thinking the meds are putting weight on me?What is dumping.Iam very bloated I look like Iam 6 months preg.Iam not sure if my oncologist.He has an awful bed side manner.Ialso take a hrdromorphone in the evening and have had bowel problems before my diagnosis.They just keep giving me more pills

[Wojtek123 in reply to foxy62]

Hello foxy62

I'm no doctor but I looked up what your taking and see that a lot of it is for anxiety, depression , your also taking a narcotic, Some of the mood drugs may not go with the narcotic or vice versa. I'd get a review from another doc for drug interaction in your place. The narcotic can give bowel problems. "dumping" is a condition that happens when you don't have a stomach and food goes directly into the small intestine. under certain conditions the body reacts by cramping, releasing too much insulin, creating a lot of gas and diahrrea. It can be controlled by what and how you eat.

[foxy62 in reply to Wojtek123]

Yes I know,Amitriptilin,Clonazepam,are for sleep,Pregabalin is for nerve pain I have severe priphial neuropathy in hands and feet from chemo.Dethamethazone helpps shrink tumors.Yes I do take hydromorphone only rarely,the bowel problem was before even my diagnosis.Yes lots of gas no diahrea Iam on senasides/laculose daily.I will see an oncologist on wed.I donot like my regular oncologist.Thanks for listening and your advice