hi - i am Dianne - had an oesophagectomyin January 2018 - went swimmingly well according to the surgeon - recovery all seemed good apart from what I thought was initial problems with the jejunostomy tube.
From a few days in it leaked and attachment of tube to my side was not perfect or so it seemed - after a week or so there was a problem that needed a procedure to clean some build up of an abscess in that area - it continued to be somewhat of a problem until the tube was removed
Once removed in March the wound healed and all was well until Sept when i noticed some leakage from where the jejunostomy site,
so a few visits to the hospital where various things were done from dressings to the site being drained to an overnight stay, after the abdomen wall was cleaned or whatever - from there the wound from that procedure healed but the jej site still leaks - i am told its a “fistula”
from Sept to now there is no pattern - initially the site purged every few days - then every day for a while - it then purged and healed and looked to be resolving until the pattern repeated 10 days or so later - for the last few weeks its been discharging most days
its perfectly manageable but it would be nice if it decided to heal - that said the alternative is not something i look forward to - i am told that to [hopefully] cure the problem involves another op which involves removing a section of my bowel - but even that might not be 100% successful so i am nervous
the purpose of the above is not to put any off from the whatever op - thats seems to have been successful but to ask if others have had this problem and what did they do - the general advice from the team is let my body sort it out which i fully respect - they have got me this far why should i argue with them but any other views would be welcome
