Experiences with

Jejunostomy

hi - i am Dianne - had an oesophagectomyin January 2018 - went swimmingly well according to the surgeon - recovery all seemed good apart from what I thought was initial problems with the jejunostomy tube.

Hi all, i had my Jejunostomy tube removed after a very long time. It has been around a year since its removal and i am now getting a burning sensation where the tube was taken out , it feels quite deep !

Hi all. i meet with my consultant last week and he is very happy with my progress so far and he agreed that i should stop using my jejunostomy tube !! very happy . Also a big day tomorrow as i'm booked in at my local hospital for the removal of my jejunostomy tube!

also to end on a good note , i am due to have my jejunostomy tube removed sometime in march :)

Hi everyone, 3 months on from his operation and my son has had his 2nd dilatation and his jejunostomy tube removed. I can't tell you how much better he feels with it out. The time he spent in hospital dragged so much but it is hard to believe it's 3 months ago.

A feeding jejunostomy is indicated to allow enteral feeding in the early postoperative period while the surgical anastomoses are healing.

We have decided to plan for the quality but even this is a little limited by the jejunostomy feeding and Bob's fatigue. All advice and experience welcome.

Pretty devastating really – my heart sank when his first words were, “what made you think your problem was malabsorption” I said I had a Vagotomy and a Jejunostomy in 1973.

This has improved a bit since being nil by mouth and getting an electric bed so I sit up at night, but waiting for an opinion now re jejunostomy so nothing goes in my stomach.

I'd got used to being fed via my Jejunostomy tube. How will my new stomach affect me in the future? Only time will tell!