I’m desperately heartbroken and devastated to be saying that last Thursday after only 17 months post op IVOR LEWIS , 9 weeks pre and post op Chemo and 7 ‘stretches ‘ my darling precious husband Tony was told the Cancer has spread to his Liver and he’s terminal.
I cannot put into words how we feel , it’s unimaginable the pain and sadness after everything he’s been through. He’s been so positive and strong throughout...I’m so proud of him....and so bloody angry at the unfairness of it all.
I’m not ready to lose him , I can’t bare the thought of losing the one person above all that i call my best friend and love with all my heart. I thought we’d get longer , I thought we’d reach retirement together....what more was he supposed to do.
It’s. Heartbreaking
Thank you for all the support and advice over last 18 months
And keep well everyone x
Written by
Debbiewallis
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I'm 7 months post-oesohegecomy myself. I cannot tell you how sorry I am to hear this. Nothing I could say is going to help, but I hope you can make the most of whatever time you have together. These things are never seem fair do they?
My heart goes out to you and i understand i can only send my love to you bothxx. i have just been told i have 6 mths to live ,i had a full Oesophagectomy in aug 2016 but its so hard ,I just hope you get better help than i have , There are no words i can say to help, i look at my husband Face he is like you we had all theses plans and our retirement spent with this .Thinking of you both xx
Hi Debbie, my heart goes out to you. As you know, we had a similar story with my Dad. I can’t give you any advice because it’s devastating it really is.
All I can say is have no regrets. That’s really helped us. He knew how much we loved him, we told him every day. So much love to you both xxxxxxx
I am so sorry to hear your sad news. And you have both been through so much already. Hope you get time to be together make nice memories. And keep positive. Just don’t no what else to say. My thoughts are with you xxx. Lab
Please don’t give up as my husband was diagnosed as Stage 4 OC terminal, 13 months ago and was given 6-12 months. You both (especially you) have to keep strong and positive.
Raymond had his third stent inserted a few weeks ago, he is very weak and tired but still fighting to stay here.
I am so sorry I really know how you feel I lost my mum to ec last week she was diagnosed six weeks ago I have lived with mum all my life my world has turned upside down I am so very sorry for your husband but don't give up I was going to give my mum cannabis oil I have heard great things about it
Sending so many prayers and hugs during this time. It is difficult to stay brave and positive during this time, but enjoy every minute you can together and love each other fiercely. We are here to support you always. Xoxo
I am at the same stage as you with my husband he also has had a year of chemo failed surgery then radiotherapy which only made things worse he has been given 3 months or less he is only 57 we going to do so much it's hard to stay strong when you know life is going to be so hard when your best friend will not be their to share your life my heart goes out to you take care sending you lots of love x
Thanks so much for caring so sorry about your mum it's such a horrible cancer my husband is struggling now but we are trying to stay strong hope you are doing ok sending you lots of love
Hi Debbie so sorry to hear this. I can’t imagine how you must feel. You might want to have a look at Charlie’s circle the other OPA community on here. Huge hugs Lizzy
My heartfelt sympathy goes out to you, but on a more practical note it's never too late too look at alternative therapies I have combined multiple therapies with standard western style treatment eg intravenous Vit c b and glutathione with chemo and there many other options they won't necessarily be a cure but quality of life and pain levels can dramatically improve the other big one of course is cannabis Talk to some natrapaths , Chinese herbalists and European doctors particularly German and Turkish
So sad to read, no-one knows what to say, just really big sorrow and heartfelt good wishes.
I have read some very promising things about cannabis oil and if it was me, I wouldn't prevaricate. Legally or illegally I would get some regardless of cost and try it.
What have you got to lose, other people have had good results I would try it
I am three years post op (Ivor Lewis) I am 72, so I have had quite a good run so to speak, however, if I start to deteriorate I will definitely try it.
Sorry to hear about your Mum, must be a hell of a blow, but try to keep your chin up and look positively to the future.
It was such a shock mum was 76 working full time diagnosed 21st December died 18th January consultant said she was fit for chemotherapy just cannot believe it
I'm not surprised, less than a month, you couldn't possibly anticipate such a terrible thing happening so quickly, poor Mum and poor you. Losing your Mum is probably one of the worse things in life, I was twenty nine when I lost mine and she was only 54. I don't think you ever get over it but time does make it less raw, wish you well, and try your best to find some joy or happiness.
This is so very sad and life is terribly cruel to some. All the lovely people on here help give strength when you feel you have none. On the cannabis oil - my niece is undergoing very intense treatment for cancer with chemo/radio - she has such terrible pain. We spoke to our Christie Hospital specialist (UK) to ask if she could take cannabis oil but was told no. I agree with you and what have you got to lose. It is not a cure but surely if there is pain relief available it should be used and without the side effects of hefty meds.
Really sad for you and your husband but your post is positive in a way as I feel I am lucky but I'm only 18 Months post IVOR LEWIS and it makes me aware that I may be too confident. When I was first diagnosed I didn't feel I minded dying and thought about not having the op or chemo as I was already 73, but I was afraid of the type of death.
It was my grandson who spurred me on just because I wanted to see him grow up.
I don't think my comments are very helpful to you.
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Got 1 year clear a month ago but 2 weeks later found mets in my pelvis
oesophageal gagging
