Post op oesophagectomy : Dumping... - Oesophageal & Gas...

Oesophageal & Gastric Cancer

6,207 members3,337 posts

Post op oesophagectomy

margie1 profile image
8 Replies

Dumping syndrome coughing when eating fatigued breathlessness But am still here so I'm not complaining lol

Just wondering if things will start to improve I keep reading of others climbing mountains running etc I so want to be able to do these things myself I used to love going on long walks I've climbed Snowden

I get frustrated that I still can't and I'm 2 years post op plus part of my left leg gets really painful pins and needles

Oops said I wasn't complaining sorry

Written by
margie1 profile image
margie1
To view profiles and participate in discussions please or .
Read more about...
8 Replies
sensus profile image
sensus

After such a major operation you're never going to be as normal as you were before. I am six years post up and I would put my life quality at about 85% of what it was before. Continue to take your doctor and surgeons advice and I'm afraid it is something you are going to have to learn to live with and manage.

margie1 profile image
margie1 in reply tosensus

Thanks Sensus I need get my brain to realise that I won't be able to do everything I used to do

davidap profile image
davidap

I am 5 years on and fairly active but have learned that energy out relies on energy in. So I carry food with me so I can keep topped up. My in inspiration is a lady I know who had her op in her seventies, she is now inher nineties.

margie1 profile image
margie1 in reply todavidap

Wow she sounds a fantastic lady

Beatrice90 profile image
Beatrice90

Hi Margie, I am just over a year post op. Dumping is less frequent now - I keep some sweets/choc in my bag at all times! I do cough a bit when eating - my GP prescribed me a nasal spray which I use in the morning which seems to help. My Lansoprazole was doubled by the Consultant at the Marsden from 30mg to 60mg - so I take one morning and night, which I believe also helps. I am building my strength by trying to get to the gym 2 or 3 times a week again - although I'm enjoying the pool, steam room and Jacuzzi more these days! I do count myself very lucky. Not sure about mountains........ but start with a hill and build up gradually. Our bodies have been through a lot and need some gentle persuation - tell yourself yon CAN rather than you can't! Good luck...... Love Angi x

margie1 profile image
margie1 in reply toBeatrice90

Thank you Angi I need get my brain into gear and as you said I CAN do it I will try the swimming and work up from there thanks again

Love Margie xx

chris_usa profile image
chris_usa

It took a long time for the docs to figure out the situation with nerve-type pain in my left leg that started after my op. A nerve conduction test showed nerve damage in the left thigh, but cause is unknown. My nutritional status was very poor at time of op, and this has led to many problems post-op. I still fatigue easily 4-1/2 years out, and cannot do many of the things that were possible post-op. You are most certainly not alone.

I take gabapentin 600mg three times daily, and this has greatly helped the nerve pain. I also have severe bone pain post-op, and I see pain management for that. If you feel that the "pins and needles" are nerve pain (neuropathy), there are certainly things available to help you with that.

Many times post-op there are problems that leave the docs scratching their heads. The important thing is to keep fighting, keep plugging. Best of Luck to you.

I like walking too, and my wife tells me that it was three years before I did not wheeze up hills. Gradually a level of stamina does return, but probably not what you had before. But keep checking on your diet regarding the dumping syndrome. Try the low glycemic index food as if you were a diabetic. And keep a check on vitamin / mineral levels.

It is part of the treatment you received that you should aim to get the best possible quality of life afterwards, and just because you have been successfully treated for cancer does not mean that you should not try and attain the best you can (and still be grateful)!

Not what you're looking for?

You may also like...

1 Month Post-op oesophagectomy

Well, finally took the plunge and had the op. I was end stage Achalasia. My hospital stay was a...

Post oesophagectomy problems

Hi, we are new to the site, and I apologise for the length of my post in advance. My husband, and...
lynnbibb profile image

oesophagectomy

Hi, I wonder if anyone can offer advise, my husband is about to have a oesophagectomy ( they are...
Pazhugs profile image

Post-op care for oesophagectomy patient

Hi, my husband has oesophageal cancer in Barrett’s Oesophagus (T2 N1 M0); completed...
Notknowmuch profile image

5 years post op

going on 5 years post op. Have had ct scan every 6 months 3 years and yearly after. Several...
Racerrick profile image

Moderation team

The_OPA profile image
The_OPAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.