scan results wait !

[margie1]

Hi

It will be 2 weeks on Saturday since I had my 2nd 6 month ct scan. since my operation 12 months ago, I have not yet had an appointment to see my Oncologist for my scan results so I am thinking "good news" hoping i'm not wrong, just hate this waiting.

Hope everyone is doing well

Margie x

[yorkshirerose]

Hi Marg

As you say 'no news is good news'. I am sure all will be well. We just have to trust and know that all is well. Are you back at work?

Love

Edwina xx

[margie1 in reply to yorkshirerose]

Hi Edwina hope you are well and it's lovely to hear from you, yes i am back at work but having a meeting tomorrow with HR regarding my job role as the occ nurse has stated that i am unable to do most aspects of my role so they may be looking to finish me! but last week i completed all my timetable (work as support in college) with no issues....only things i said i am unable to do is push a student in a wheelchair as my consultant has said i cannot do that for 2-3 yrs and walk into town because of the distance but that will improve !!! so i dont know why she has stated those things in her report ?????

Marg

[Alphagista]

Hi Marg

I can imagine how anxious the waiting is and I'm wondering whether I would want these scans. Down here in the deep South West we don't get offered any scans only three monthly consultations which usually end up as four months. I attended an upper GI meeting (as they call them) last week and the oncologist was there to talk about testing of new drugs and answer questions. I asked why some get scans and some don't.

It appears that the attitude down here is there doesn't appear to be anything wrong then don't look for it. A fellow patient said that he had had bowel cancer and after a routine blood test they had picked up the suspicion of another cancer and that was oesophageal.

The Doctor said this was fortunate since only certain cancers are detectable by blood test . Unfortuneately I didn't think to ask him the question why not give us regular blood tests?

I'm now 8 months from op and aged 76 and hoping.

[margie1 in reply to Alphagista]

Hi Alphagista

thank you for replying I was told i had to have the scans and blood tests as i'm on the research, but i'd much prefer the blood tests lol how are you doing? hope you are recovering well

take care

Marg

[Alphagista in reply to margie1]

Hi Margie

Kind of you to ask how I am doing, I really don't know. I had a brilliant recovery after the op and have had a good six months on the whole but for the last couple of months its been good days and bad days.

Every little strange twinge sets me off fearing the worst but hoping for the best,now like many I wait to see the consultant (should be middle this month but looks like it will be the middle of October)

I'm sure your scan results will be fine

Alphagista

[bmwhatchback in reply to Alphagista]

I too, am confused about blood tests and scans my husbands's surgeon only wants to see him after 12 months and the oncologist, after 6 months, was a 5 minute chat, no blood tests, no scans. Is this normal? Any advice please. Lyn J

[lizthebob]

Hi

Alpagista I was going to answer the same as you. I must know you by sight as I also live in the south west and was at Go Kernow last week! It's a small world!

[Alphagista in reply to lizthebob]

Hi lizthebob

A small world indeed and obviously great minds thinking alike.

May see you in December. Keep well.

[bigemu]

Hi, I have had the full op nearly 17 months and have yet to have a follow up CT scan or whatever, should I be worried.

I have had no after affects other than fatigue after eating, but that's as much down to volume both (liquid and solids) as I am eating as near as normal and enjoying a few beers beforehand.

I'm back working full time, but still worry every day about "what I had", and suffer many sleepless nights. I suppose that part will never go away.

[hilr]

Hi all,

I live in South Wales and had surgery 4 months ago plus pre and post op chemo, and have also been told by my surgical team and oncologist that they don't intend to scan and will just see me from time to time to see how I'm doing and how I appear. The oncologist also said there's no point in scanning as we can't treat metastasis which is clearly not the case and I guess a cancer or metastasis can exist for a while without presenting symptoms? I am very concerned about the disparity of approach throughout the uk. Is this a topic the OPA could do a survey on? Surely after all we've been through we deserve the best follow up,whatever that is? If the logic was clear it would be easier to accept.