Does anyone have RA and secondary Fibromyalgia? If so, how do you manage? I'm not.

[lifebeginstoday]

Could do with Miranda coming round for half an hour to cheer me up!

Jess x

[sylvi]

It is hard i will give you that. I don't have a day when i don't have pain,some days are ok and then i can do quite a bit,the others days i could cry for england. There drugs out there to help and i am on one now, take it twice a day,but at the moment i am taking three a day for the time being. I don't have the answer your looking for, just had to get used to it i am fried.xx

[Hidden]

IT is v hard.. BUT Sylvi IS OUR Miranda!!, today im so daamn tired x

[Philip]

Hi, there are a few of us on here with both RA and FMS and yes it is rather bad, how do we cope, probably the same as you, we suffer suffer suffer.

Maybe have a word with our doctor and he might give you some morphine patches or something similar, I hope things quieter down a bit for you soon.

Philip

[dawe]

Hi there yes I have fibro and arthritus in constant pain allso very depresed I am on aslow release trama.dol 2 a day. Im also taking duloxetine for the fibro all this medication afffects my concentration and my ability to drive my car,I try to stay positive but its realy hard. I hope you'll feel better soon just remember your not alone there is so many people with these terrible diseases I hope we can all try and support each other. Brenda x

[holly2812]

Yeah I do as well.. It's hard because sometimes I don't know which pain is which and what to do to help it. Lol my whole life is trying to help my body, everything I do my body is in the back of my mind. It is really hard. Xx

[minka]

IM A BIT LIKE HOLLY TO MY BODY AND WALKING THINKING OF WHAT MY BODY IS DOING TRYING TO WALK RIGHT IS ALWAYS IN THE BACK OF MY MIND

AND YOU GET UP THE NEXT DAY AND ONE THING IS A BIT BETTER THEN YOU LOSE IT AGAIN THE NEXT DAY ITS REALY FRUSTRATING TO MANY LITTLE ACHES AND PAINS TO THINK ABOUT ALL THE TIME

I DONT KNOW WEATHER I HAVE SOME FIBRO WITH IT OR NOT.

IF I WAS TO GESS I THINK I HAVE GOT SOME RAYNOLDS A BIT OF FIBRO THROWN IN AND KNEE AND FOOT PROBLEMS

AND ITS A RIGHT LITTLE MIXTURE BAG AS TO WHAT IS CAUSING WHAT BUT THEN IVE ONLY DONE 12 MONTHS NOW UN DIAGNOSED PROPERLY

i hate ligaments cause i think this is what comes into play for a lot of us not walking right etc one affect the other compensating for this that and the other

and to top it off having a knee investigation on thursday thet is doing no good for me stress levels as knee is being a good boy now at the moment but i dont trust the bugger on little bit

and the ankle hurts more

[LuckysJoy]

Hi Jess

Lisa Here well to answer Your Question, Well I DONT Well, Not Very Well Both its agonizing on Most Days Loads of Meds, Heat Heat Heat, Biofreeze warm baths (I wish) dont have one

My Goodness I feel For You, I am now Pretty Much Housebound, Well 90% Now just find the treatment that works for you, and from What i have been going through lately Learn The Meds They are Giving You. check, Web MD Mayo Clinic, But Proper Medical sites, Not just some internet site, I have found one of the meds they ha me one, contradicted 2 of my pain meds, as it made Narcotic pain relief, less effective, What? why would they give me something like that. Not to mention it caused, peripheral edoema which I have had to rind emergency services for, also Loads of the other effects I have recently been experiencing and Guess what I had to sort this Myself, And see it was Causing Loads of My problems, I STOPPED IT IMMEDIATELY So all i can say to Help, Is Know you Medications and what they are doing for you OR Against you

All The Best

Lisa Gentle ((Hugs))

[lifebeginstoday]

Thank you everyone for all your help, several of your replies are a real help and I now can put them into practice. Lisa, I too am pretty well housebound. It's depressing AND very hard for family/friends to know what to do and say to help.

I should use forum more I guess for support and understanding during this time especially. Just been told I have the secondary fibromyalgia but known for a long time I was getting worse not better. Seeing Rheumatologist on Friday which gives me much anxiety. Scored 19 on HAD scale end of last year but sadly no explanation or mention of help/treatment.

Best wishes to you all

Jess x