about 5weeks ago I stopped metoject with the agreement of the consultant, I couldn't cope with the side effects any longer,I'd been on tablet & injection for about 18 months so feel I'd given it a good shot, I'm now taking sulfasalazine instead, I'm only on week 5 & was worried whether I'd start getting more pain,the consultant said that methotrexate takes months to get out of your system so fingers crossed sulfasalazine works.
I can't tell you how happy I was to be off methotrexate & how I actually feel I'm getting my life & my brain back, no hangover feeling or brainfog, not wobbly or slurring for a few days 🤣 initially felt sick with sulfasalazine & was taking cyclazine 7 days a week but now only the odd day do I feel sick,so even less tablets to take 😀
the pain in my back,side & front of ribs though 😔😔😔 had a full bone scan & couldn't have prednisolone until after this, I was lucky & only waited 2 weeks for the scan so started on pred the day after.
I'd also bit the bullet &booked a holiday to zante, wasn't planning on going abroad this year with covid etc then kept seeing my friends lovely photos on holiday, I live by Cardiff Airport & seeing the planes taking off thought sod it 🤣booked & then all on the news were cancellations,missed flights, lost luggage etc,was really worried but arrived in zante nearly 2 weeks ago & I'm so glad I did,kept my mask on the whole flight,there were about 3- 4 other passengers who wore them but that's all.
I started prednisolone the day I left, was so happy as trying to sleep in a strange bed in the heat with my back,side etc would be awful,the first couple of days I could feel the pain easing, only on 20mg for 10 days then 15 for 10 days, 10 for 10 days tapering off to 0, but, I'm now on 15mg &the pain is coming back just as bad, I'm in absolute agony first thing, I'll have to ring the helpline when I get home as I'm assuming that sulfasalazine hasn't quite kicked in, when I was on metoject & had this pain, within a couple of days of taking prednisolone the pain went.
anyway,I know sulfasalazine can make your wee orange which it did but, when I first got my prescription the chemist didn't have enough so I had to go back to get the rest, these are what I brought on holiday, as soon as I opened the bottle I noticed the tablets were white not orange but also my wee is normal colour now, I checked the bottle which says sulfadiazine, does anyone know if they are the same as sulfasalazine? I assume the chemist wouldn't have given me something else & I'm more than happy having normal colour wee 🤣😂
sorry for such a long post, I seem to write more & more each time 🙄
this is a photo of our pool, so lucky to be able to cool off & have been thinking of you suffering in the heat in the UK (or wherever you may be)