So excited but full of trepidation, just had a phone call from NHS Rheumatology department to say they've got a cancellation appointment Thursday! 11 months waiting for this, wait soon over.
I'm excited to be actually seeing an NHS consultant, this will give me access to the helpline which I've been unable to use since a private diagnosis nearly 2 years ago.
I've been keeping a diary (lapsed a few times) of what's been going on which I'll type up tomorrow & try to keep as brief as possible & take all the letters I have from my private consultant.
I've been putting off making an appointment with the private consultant as I know I'll have to stop the lefluminode due to peripheral neuropathy, the only other option he could give me was sulfazine which I understand is not as strong as lefluminode & can take up to 6 months to work, the consultant believes I'll need biologics which he can't prescribe.
I was going to post 2 weeks ago as I'm finding as the week goes on from having my weekly 20mg of metoject, I get more & more of a brain fog, really bad memory, can't remember what things are called & unsteady on my feet, I had to ring 111 the other weeks as I took 2 lefluminode, as soon as I took the second one I realised & panicked, I'd now taken 40mg! Anyway after speaking to 111 then having to ring out of hours drs, them having to check with the poison unit, everything was OK.
Ive read on here numerous times how a lot of you on mtx take folic acid up to 6 times a week, when I've mentionedit to the consultant hes always said one a week is fine.
As I'm still feeling sick for 3 - 4 days after metoject I decided to try folic for 6 days leaving out metoject day to see if it helps with the sickness, brain fog etc. I bought some from a supermarket last week, I only started taking it last Thursday so not sure yet if it's making any difference, although I've read that peripheral neuropathy can cause the above too.
Fingers crossed the NHS consultant will be able to help. X