Hi everyone, I've just been to my first consultant appointment for my RA, and I feel confused, lost, and fear I'm going to be left to deal with my stiffness, pain, inability to do normal stuff including fun things like crafting.
The doc was nice and doesn't want to put me on immune suppressing drugs too soon, but he never heard my full story (or even 10% of it) because he asked such quick fired questions where I might manage 1 word responses or some none at all. It was all so overwhelming and because I have a bubbly personality (who masks pain and suffering), I don't think he believes me. My family history is strong, but also strong in not having RA or inflammation markers...and despite my swollen joints on my hands, I apparently am "normal" according to my last blood test...
The why am I struggling to write even this short post????
I'm worried about the rapid change in my joints which I'm seeing every few weeks. I use my hands to do things that bring joy to my miserable life. I make beautiful crafts. If I lose that I don't know how I'll make it through each day. I already can't do it weeks on end, and I feel so depressed.
Has anyone had a similar experience? What kind of joint damage is a sign they are turning seriously? (most of my family for generations were severely deformed) Are there alternatives that I can be doing? (exercise, supplements, diet, stretches, etc.)
Also, I am a part-time gardener. Should I stop? I don't want to destroy my hands more, but I barely can work at the moment between the RA and my mental health. I can't find any benefits to help because searching is so difficult, and I just can't work full-time or in an office with my anxiety.
Any help/advice would be greatly appreciated.
Thank you so much in advance! xx