Cold toes and high CRP

[Nikki_55]

Hello guys and gals. I read every day and your advice and knowledge helps me a lot.

I just have a couple of questions and any help would be great 🤗

Over the last few weeks I have been experiencing cold toes. Never had this before. I haven't been diagnosed with RA but I have sarcoidosis and my consultant prescribed Hydroxy for arthritis. I have it in most of my joints at different times.

Also my last blood showed high CRP

should be <5 but is 17mg/L

So... how high IS high to you?

Thanks for taking time to read 😊

[Marionfromhappydays]

Sorry you've got sarcoidosis, my dad had this years ago and he was really poorly with it, hope you aren't too bad although the joint issues can't be nice x

CRP is quite a crude test, for some people they might feel their inflammation is really going for it and only have a slightly elevated level (my last CRP was 11 and I felt terrible) whilst others can feel not too bad and have a CRP of double that.

I use to do the CRP tests in a hospital lab and have seen some corkers, quite a few things can cause a raised CRP not just inflammation (bacterial infection, heart issues etc) but its a handy test to track how treatments are going.

Hopefully the medication will help alot and reduce your inflammation .

Take care x

[Nikki_55 in reply to Marionfromhappydays]

Thank you so much for your reply. Yeah the sarcoid is a tough one.. the fatigue knocks me out so often and at the minute I have been in bed for 4 days, joint pains really bad and voice nearly gone with tight chest! You never know where it is going.. my sarcoid team are pretty good at getting things sorted, which is good as I can't get in to see a rheumy due to the covid. Think I might have to add or up the dose atm as dont want to end up off my feet.

Wow I can talk, sorry about the essay! Should get you off to sleeps though! 😉

[Marionfromhappydays in reply to Nikki_55]

No it's good to have a chat, I remember my dad felt like he had bad flu but it wasn't! He did get over it though (took a fair few weeks but like you it affected his chest).

Covid has alot to answer for doesn't it, do you have a contact email for the rhematology team at your hospital so you can ask about the increase in dose of you medication ?

Take things easy, don't push yourself too hard, slow and steady 😁