throat and gut my cure hopefully???????????????? - NRAS

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throat and gut my cure hopefully????????????????

pauluk60 profile image
10 Replies

hi peeps maybe this is not the place but may help someone but will need docs approval i suffer badly with gastropareisis slow emptying of stomach also throat probs and chuck in constipation for a near full house point that i am trying to say is i take Tramadol for o/a only when in dire need but last time needed to take also found it was like a cure for throat and gut as throat no longer sore could swallow food without sticking gut was not swollen i can only say i could not believe it the only spoiler was the constipation got worse so i have eased off to two tabs a day and it still seems to be helping me i know i am in r/a room and peeps dont have Tramadol to hand but this as helped me so much i cant believe it no feeling of being sick/bloated after two spoonful food i think it needed to said please tell me what your thoughts are good or bad

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10 Replies
helixhelix profile image
helixhelix

I hate Tramadol, for the mental effects but it also makes me so constipated that it’s hardly worth it!

pauluk60 profile image
pauluk60 in reply to helixhelix

mental seems to me ok constipation i agree but as said only taking 2 a day so hopefully should be ok

happytulip profile image
happytulip

Metaclopramide is used to assist gastric emptying. I suffer with gastroperisis, swallow problems and constipation. I've often looked about 8 months pregnant for weeks on end.

The three things that helped me alot was metaclopramide, a low FODMAP diet. I cannot emphasise enough how switching to a low FODMAP diet helped and I already had a good diet, and excersise.

I also take laxido if needed.

But if gastroperisis is a problem then you need to stimulate the gut and metaclopramide will be a drug that could potentially help.

My gastroperisis is a result of EDS and ANS failure secondary to lupus.

I hope some of that helps.

pauluk60 profile image
pauluk60 in reply to happytulip

tried it never did a thing was was still sick and consulton put me on antibiotics erythromycin which i am still wonder why did nowt gastro caused by db2 so they say

Lizard28 profile image
Lizard28 in reply to pauluk60

I have gastroparesis, I can’t take erythromycin unfortunately, I take domperidone. I guess everyone is different, it’s trial and error really, eating small meals often, that suits me as I’m a grazer. Told to cut down in fibre and many vegetables, it’s a difficult diet to follow, I have many allergic reactions to food so have to be very careful what I eat, I’m so glad I can eat cake, my saviour, miss brown bread though. If your erythromycin not working you should ask to be changed to another med.

pauluk60 profile image
pauluk60 in reply to Lizard28

hi liz they put me on domperidone did nothing for me i find the emptier i am the better i use a wizzer to make meals easier to eat bread can be a problem causer so just a round of white danish but i must say that the tramadol tablets are a god send when feeling choked up/bloated i dont think their on any list of remedies but its helping me 100% so far i cant believe it i have read that antidepressants have an effect on tummy that helps

Lizard28 profile image
Lizard28 in reply to pauluk60

I say whatever works for you Paul, I find all the gastroenterologists I’ve had have not been been helpful, I was referred back to my GP and discharged after my GES test with a prescription for erythromycin which I couldn’t discuss with him so had to tell my doctor I can’t take that. I also got a leaflet in the post advising me what not to eat. I also take cyclizine which works for me. Best wishes

pauluk60 profile image
pauluk60 in reply to Lizard28

hi liz same with me its hard to get anyone interested dietitian had a funny do when i told her what i had didn't know about it kept trying to tell me i must eat more fiber consultant put me on a/bs for life that was it there 2 good sites that i go for diet info both nhs one is st helens and knowsley gastroparesis diet plan another is Huddersfield and calderdale gastropareisis diet plan i found them helpful

Lizard28 profile image
Lizard28 in reply to pauluk60

I agree, my GP told me to eat porridge in the morning, 🙄 I told her that fibre is harder to digest and stays longer in the stomach. The problem with me is the only protein I can eat is meat, I’m allergic to fish and poultry which makes meals harder to plan. They advise you to try and keep off meat. I have never been offered to go to a dietician but I know what I can eat and what I can’t. I found a soup recipe from the gastroparesis site, I can’t eat lentils so this soup suited me. My husband hates it, his fave is a thick lentil, but that would make me sick. The biggest worry for me is eating out which isn’t a problem just now or even going to friends houses, I feel like I’m being so fussy as a lot of people don’t understand this diagnosis. I hate when they say “is that all your eating” 😬

pauluk60 profile image
pauluk60 in reply to Lizard28

liz i know the feelings had them all somedays a pea will b to much and you sit there hoping it will go down and not up luckily not happend outside as of yet sometimes use diet coke/Pepsi to help they say not but it helps it takes about 4/6 cans but boy is it worth it they used to promote use of coke to break bezoars up in stomach undigested food rolls up makes a ball that you cant get rid of it well we will have to have a party and see who can eat the least i could eat for England when i came back from pub and then have a plate of sarnies makes feel ill thinking about it now those were the days 10 plus pints fish and chips and peas take away 4/5 rounds of buttered bread wow and work next day arghhhhhhhhhhh all a distant memory now well back to me bowl of watery of soup i use old kids nursery bowl to make it look more i do go on sos

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