Fatigue back: Cooler weather and I had a brilliant day... - NRAS

NRAS

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Fatigue back

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Cooler weather and I had a brilliant day then yesterday afternoon fatigue took over.slept from about 3pm till 7.15this morning then had to get up to get my son up for school ( my God it was a struggle)bless my son he walked the dog I have no chance . I only went back to work 2 days ago(I work 1 1/2 hours) and don’t know how I will manage today. I was at my GPs yesterday for a checkup and mentioned my eyes and mouth were really dry. She mentioned that my Rheumy suspects Sjorgrens syndrome and they were going to send me for tests after my next appointment which is in 6 months . I told her my life has been beyond a struggle since Christmas and I needed help now. She said leave it till my appointment and I’m ashamed to say I burst into tears and said I just can’t continue to wait and said she would try to get an earlier appointment and get me tested for SS as she thinks my continued fatigue which comes with my dry eyes and mouth along side night sweats. I’m soooooo tired.

Sorry about this bad morning

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3 Replies

Please check out bssa.uk.net/ The British Sjogren's Syndrome Association. I'm a member and their info is brilliant.

Hezekiah profile image
Hezekiah

Bursting into tears sounds like the right response to your situation, and nowt to be ashamed of. All the very best to you.

Sumdy profile image
Sumdy

Sending gentle hugs and hope you're soon feeling a little better. I often burst into tears. Nothing to be ashamed of. It's the disease. I had a 6 hour round trip to do yesterday....had to keep stopping as I couldn't keep my eyes open! Thinking of you xx

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