Bone Marrow and RA: Today I was told of a friend of a... - NRAS

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Bone Marrow and RA

tristin profile image
35 Replies

Today I was told of a friend of a friend of a friend that treated herself with Bone Marrow soup after initial RA diagnosis and cured herself leaving no RA markers! Initial diagnosis must have been wrong.

I started searching for info on Bone marrow and RA. There is developing research showing how RA can erode the bone, gain access to synovial fluid and inflame and change bone marrow. Research comes from The Journal of Immunology in America. You need a PHD to read. jimmunol.org/

So maybe there is some link or benefit with eating soups that are based on bone marrow, some how replacing a bit of what is being lost.

Wondering if anybody has come across this sort of research or even Bone marrow soup?

I may take a few days to reply if there are any question. (not that I know anything about the subject).

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tristin profile image
tristin
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35 Replies
Jules13 profile image
Jules13

You can now get bone broth soups in most supermarkets in the fresh soup aisle. I’m a designer and just worked on a new range of bone broths. The health benefits are great. Or you can simply go to your local butcher and ask for beef or lamb bones. They will usually give you them for free. X

JGBH profile image
JGBH in reply toJules13

Hi, what is the best, more natural bone marrow broth in supermarkets? And which supermarkets? Have never seen them... Thanks.

nablur profile image
nablur in reply toJGBH

I do my best to eat everything organic. It’s probably easier here in California where I live. Most groceries and even Walmart sell an organic bone broth. I’ve had the beef and chicken. Fairly reasonable prices. After reading this I’ll be having more.

I like a brand called Pacific, but I’m sure there are many others your way. Just be sure to read the ingredients and look for the Organic symbol on the package.

JGBH profile image
JGBH in reply tonablur

Thank you for replying. I live in the UK and have not seen anything like that in supermarkets. Perhaps in healthfood shops, will investigate.

Simba1992 profile image
Simba1992

May not be as beneficial as thought. Heavy metals may be a problem.

nutritionstudies.org/drinki...

helixhelix profile image
helixhelix

Well I've been brought up on my grandmother's chicken soup and didn't stop me getting RA. (our traditional chicken soup is a clear broth made from the carcass, not a thicky milky soup)

AgedCrone profile image
AgedCrone

If you think it might work....probably no harm in trying it.

But I kinda think the boffins might have already been their in their Labs.

Mmrr profile image
Mmrr

A good healthy diet will help you feel generally better, but I doubt if eating bone marrow soup will make a noticeable difference to your RA. I make chicken soup with the carcass of all chickens I buy , have done all my life, yet still have RA.

Stars27 profile image
Stars27

Tristan, bone broth is full of great stuff for the entire body. I’ve been eating it for years . I think it helps me to be the best I can be and Fight infections, but I think I’d still have the disease. I had a remission for almost ten years and I really thought I’d cured myself. But it came back with a vengeance five years ago.

Kalimera57 profile image
Kalimera57 in reply toStars27

Hi Stars I’m very interested in your post as you are the 1st person I’ve known who has had a long remission like me. Mine was 13 years. In those years I’d had no meds, no pain and had walked about 6 miles most days. It felt like a miracle. In those years I’d had lots of stress too- sick daughter, looking after her child, my mum with dementia plus working in a job which I loved. Then I had a loft conversion and that ‘broke the camel’s back ‘. What do you attribute RA coming back to? And why do you think you had a long remission? In my case in spite of all the stresses I was never physically tired and my job was great.

I’m sero negative. Are you? I’ve had a bad flare now for 2 years. I eat healthily and do all the other things which are supposed to be good for our health but I don't have consistent good quality sleep.

Here’s hoping we may have a miracle again. All RA sufferers.

Stars27 profile image
Stars27 in reply toKalimera57

Hi kalimera, so glad you too had a long time pain free. I’m sero positive. I was diagnosed when I was thirty after losing my mum very suddenly and shockingly.( My gran had really bad rd. ) I went into a massive sudden flare, it all happened really quickly and it was so bad. I literally couldn’t move. I was lucky I got diagnosed straight away , and started meds. Every med I tried, and I had them al, I reacted to really badly. I guess I’m just hyper sensitive to medication. Long story very short, after eight years of trying everything I went down the natural health route. My consultant at the time said that although he had no evidence, whatever I was doing was working as well as any med. so eventually I just stopped going . I had ten years of managing with not even a paracetamol. Then at fifty, it suddenly came back . I went into a big flare. I went back to see a rheumy and had x rays and bloods which showed high levels of inflammation and damage being done. I am on a biologic and it helped almost immediately. I think it was the menopause and the changes I was going through. I still believe in the benefits of alternative therapies, but I also know that the disease was lying dormant, sleeping, and it had also done quite a lot of damage during those ten years. I walk a middle path now . I hope you get the treatment your body needs to feel better hun xxx

Kalimera57 profile image
Kalimera57 in reply toStars27

Your story is similar to mine. RA started when I was going through my divorce at 37. Like you I went down the natural route - diet,exercise and reflexology and diclofenac. My sceptical GP even started to be impressed. My menopause coincided with my 13 year remission so I was lucky.

I’m on naproxen now and still trying to ‘ get better ‘ using natural methods. My rheumatologist wants me to go on sulphasalazine .I’m going to try the Paddison programme as a last resort.

Wishing you all best!

Ann

Hessie5 profile image
Hessie5 in reply toKalimera57

I too tried the natural route for 3 months as didn’t have the meds ! But one day out of the blue I had the most horrendous shoulder pain that kept me up most of the night. My left foot also was being impacted greatly. My guess low grade inflammation. Today, I reluctantly take my meds balanced with good healthy eating. As I have always said, we are all unique. I have good days, and forget I have R.D. and the not so good, where I just curl up on the sofa with a cuppa 😊 and my cats.

tristin profile image
tristin in reply toStars27

Thanks Stars27.

Very sorry to hear it has come back after 10 years remission. Must be very disappointing.

What a pernicious beast this RA is. best wishes.

tristin profile image
tristin

Thanks for input everybody. My 'informant' talks of the benefits of the marrow component of bones which studies don't seem to have looked at. Plus complete avoidance of stimulants coffee, tea, alcohol, tobacco, (same plant family as tomato and potato) plus no sugar, gluten etc.

Bone marrow soup is an age old cure all remedy. I will be incorporating marrow soup as part of my healthy balanced diet and will get back to you very shortly when fully cured (LOL).

Parker16- profile image
Parker16-

Hi As a pescatarian I don’t eat any meat products but this chat is interesting. As friends in this site with RA we are always looking for new ideas to help us. I always wander if what I eat has helped to bring this on.

Do you know if there has been research. On how many vegetarians, pescatarians & meat eaters have RA. I have asked the hospital for help with nutrition but they don’t offer it and the nurses don’t seem to believe in it themselves really. They just think you have it and need drugs. That’s why I love to hear others on this site. If this theory is correct I wander what vegetarians could add the their diet .

Keep well Pam

helixhelix profile image
helixhelix in reply toParker16-

I think the rate of RA is less among Asian populations, where vegetarianism is higher that among european populations. But then these populations also have lower average body mass index and are less likely to be overweight. And RA exists, just a smaller percentage of people. So could be the slightly different genetics, could be the food, or could be the lower weight lifestyle....

This is an article anout lifestyle by a rheumatologist who I always find interesting

rheumdoctor.com/tag/blue-zo...

AgedCrone profile image
AgedCrone in reply tohelixhelix

How refreshing...a doctor who will actually say " I don't know "

Well worth keeping an eye on.

Mmrr profile image
Mmrr in reply tohelixhelix

epigenetics is fascinating. good article.

Rheumagal profile image
Rheumagal in reply toMmrr

I was going to mention epigenetics. Thanks for mentioning it. Very interesting stuff!!

sylvi profile image
sylvi

I might upset some people here,but i hope not. I don't think broth soups or any other sort of nutritional pills or potions make a scrap of difference. If your going to get it you will. I have a sister and a brother and neither of them have RA and we were all brought up the same. There is ra in my dads side of the family my grandparents both had it yet no one else seems to have it. If these ideas worked surely the NHS would use them to save money .xxx

Mmrr profile image
Mmrr in reply tosylvi

I'm with you sylvi, eating a healthy diet is sensible, for everyone , not just people with RD. But diet as a cure , I dont think so. RD is far more complicated than cutting something out or adding something into your diet.

nablur profile image
nablur in reply tosylvi

If diet could cure this, none of us would have it! I went off sugar, salt, night shade, carbs and eat organic. It didn’t change a thing. Today I continue to eat organic because I don’t like the thought of a bunch more chemicals in me.

At this point I’m not giving up the things I enjoy anymore. I’ve already had to give up many other things I enjoy because of ra.

These are my choices. Others can do what they like. 😀

AgedCrone profile image
AgedCrone

I agree Sylvi...I'm sure if any type of food was actually detrimental to

RD- some research would have picked it up by now,

oldtimer profile image
oldtimer

Having had my bone marrow attacked by Rheumatoid Disease, I'm very aware of it! But I can't see how eating bone soup would be any better than getting your proteins from other foods. Everything has to be broken down by the body and built up again.

alexask profile image
alexask

Some people achieve remission through diet. It may be about what you don't eat though. I took a reactive food test and since giving up wheat, oats and eggs my condition improved. Still have one swollen finger though.

dbestdeb profile image
dbestdeb

I was a member of a FB group for curing RA naturally and bone broth was one of the suggestions, as well as cutting all grains and sugars from your diet and giving yourself coffee enemas. (Ugh)

We all know that when we eat very clean, we feel better in general, but I don’t believe RA can be cured with diet. They even think that existing damage can be reversed by their protocol.

But it never hurts to try. Be sure to cook your bones slowly for at least 24 hours. When I tried it I used a crock pot. It does make good soup.

tristin profile image
tristin in reply todbestdeb

Hi Dbestdeb

Is it possible to say what sort of results the FB group get for you and others?

Will do a 24 hr crock pot cook but think I will pass on coffee enemas. Why coffee - seems the wrong end!! (hope I am allowed to say this).

dbestdeb profile image
dbestdeb in reply totristin

Results were varied. Some say it really helped and some claim not at all. Keep in mind, these people pretty much eat nothing but chicken, leafy green vegetables, and maybe some berries. They say by doing this for a month, they can add back one food at a time and see if they react negatively to it. Some have found they can add back beef, brown rice, and quinoa. Most never eat anything made with flour again—-No bread, pizza, pasta, pastries, etc. it’s a tough lifestyle.

dbestdeb profile image
dbestdeb in reply todbestdeb

Oh, and the coffee enemas were to combat the fatigue. I never did try it though.

Rheumagal profile image
Rheumagal

Great post!

Im a retired natural health practitioner and one of my mentors had an autoimmune disease. She was able to put hers into remission by supporting her immune system with cultured foods, bone broth and herbal treatments. Bone broth is extremely nourishing and can support the immune system and has been known to heal leaky gut. Autoimmune diseases are thought to be linked to leaky gut. It’s quite interesting because it’s a possible causal link to diet and the immune system. And the majority of our immune system is in our gut. medications, antibiotics etc can disrupt the balance and leave us susceptible to illness. So probiotics and other cultured foods , bone broth, gut supporting herbs can help restore balance.

That being said, it doesn’t unfortunately reverse or cure disease. For some it can minimize symptoms or bring on a remission , sadly not for all of us. My RA still progresses aggressively no matter what I do. But it’s still good to eat well and nourish our body with good healing foods.

Keep up the fight! ❤️

tristin profile image
tristin in reply toRheumagal

Hi Rheumagal

Any chance of a bit of a list of the things you mentioned such as cultured foods, probiotics, gut supporting herbs, etc. Would like to incorporate some of them into my diet. Sorry you are having such a difficult time with things. I am only one year in and symptoms not extreme thanks to Drs drugs. I find it hard to imagine any natural remedies working against the intensity of RA, other than minor assistance. With a poor diet things can only be far worse. Thanks and best wishes.

tristin profile image
tristin

I have to agree with all of the above. Just an idea that if your body needs a certain type of nutrient or compound there may be benefit from consuming plant or animal parts that contain similiar compounds in more concentrated levels. Example of eating more fish to get more fish oil for problem joints. Or for bones and marrow that are being dissolved by RA then eat more B & M. Same principle as eating green leafy vegetables. For me worth a try. No one thing can cure RA - agreed but I am working to achieve remission or slow down the RA progress.

It would be helpful if there was a list of good stuff that can be added to or commented on as we search for answers.

tristin profile image
tristin

The Acupuncturist/massage/healing person (trained at Uni of NSW and also in China) says my RA may have something to do with gut not kidney and spleen as I mentioned (K & S was last weeks hobby horse - now onto B & M!) I need to discuss more with her. Very heartening to hear that remission is possible for some even if a tiny number. Why cant dietary changes/additions of which some are known and some to be discovered dramatically RA outcome in a growing number of us combatants? If a minute fraction of the drug companies money was spent on discovering natural cures we might be much further down the track. Thankgoodness for MTX and all the other stuff but I guess it is hard to recover vast research millions plus profit from readily available products like soup bones.

Jules13 profile image
Jules13

So in the UK, Ocado do a few bone broths in their fresh soup. Ossa bone broths, Borough Broth Company. Or at Asda, Tesco and Sainsburys there is Daylesford Organic Broths.

To be honest it’s so easy to make it at home. When you’ve roasted a chicken just boils down the bones. Or get bones from the butchers. X

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