NPR and Giant Cell Artreitis: I have been on prednisone... - NRAS

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NPR and Giant Cell Artreitis

Trish49 profile image
4 Replies

I have been on prednisone for over 8 years, have been on 3 mg for a long while. Specialist has said I can try and come off them. Going down .5 a month, just wondering what to expect over the next few months if I'm successful.

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Trish49 profile image
Trish49
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LizzieR profile image
LizzieR

Hi,

Sorry, I have no experience of this. But just wanted to reply to say I hope you get the answers you need. And to say 'Good luck!'

Fra22-57 profile image
Fra22-57

I have been on 10 mg for 5 years.I know can cause bone damage etc but what can you do.I have just seen another doctor and he is recommending to my general rheumatologist that he adds another DMARD to my others.I tried reducing myself just one tablet and was in agony so thought better not meddle.

I hope it helps for you.

dbestdeb profile image
dbestdeb

Is your doctor replacing the steroids with something else? If not, you might experience pain. I had been getting steroid shots every 2-3 months, and when I got a new rheumatologist she said that steroids are best saved for emergencies. They are not good for long term use due to the damage they can do. Good luck coming off.

Trish49 profile image
Trish49

Thanks for answering.

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