High & Low: Yesterday I put a post up about finally... - NRAS

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High & Low

11 Replies

Yesterday I put a post up about finally hopefully getting a result..so why is it tonight I'm so low..? Im in pain..alone & feeling very sorry for myself..I have family that love me..I have friends that care..I have everything that alot dont have..so why am I so down? Everything I have.love.& grateful of. Dosnt take away the pain..x

11 Replies
allanah profile image
allanah

Well sometimes you just need to be by yourself to think. Others sometimes aren't enough and dont get it.

Could you do something n8ce for yourself. Put on an old movie. Get a nice fleece blanket and a hot water bottle and just snuggle.

Have the painkillers as prescribed and know tomorrow will be better.

We are all here for you and have been where you are at the moment.

Hugs and love xxx

Janesidney profile image
Janesidney

Hey I can totally relate to how you feel, at the moment each task feels such a chore as takes so much effort. I fight to keep my independence but that doesn't take away the loneliness and family do not actually know the pain or the fatigue.. Its extraordinary to explain to someone. Plus I was told keep away from anyone e with colds coughs illness infection.. And after speaking g to my mum on tbe phone it was obviclear that she had cough and sore throat..yet she insisted on visiting me next day saying it's just an irritation. After recently being g discharge from hospital with pneumonia.. Then starting g the benepali Injections.. Of course I'm going to be vigilant.. But will others respect and understand to keep me free from germs...NO!

popsmith1874 profile image
popsmith1874 in reply to Janesidney

It's hard for anyone else to understand what we are going through, times can be lonely and educating people is hard as we might look well at times but we are not and it's up to us to deal with it in our own way we can so keep chin up and try to plod on as best y can

sylvi profile image
sylvi

You can be in a room of people and still be lonely darling and as Allanah says it give you time to think. Take your pain killers to ease regularly to ease your pain,they might not take the pain away,but they will make it easier. As Allanah has said do something for yourself,i do adult colouring and it helps me relax and though it doesn't take the pain away it makes me forget its there darling. We are all here for you so don't give up tomorrow is a fresh day and the sun will be up. Hugs from me.xxxxx

allanah profile image
allanah

Good morning handydebs.

I hope this Easter day finds you a bit more settled xx

Thinking of you

Hugs x A

Hessie5 profile image
Hessie5

Hey Handydebs - that's the great thing about this forum we can all relate. When I feel frustrated, angst and feeling sorry as to why me. I have to remind myself that it could be so much worse - yes I can't walk well with the damage created by having RA - crawling to the toilet, up and down the stairs on my bum has been tough. I remind myself that at least I have my feet, I have medication, awesome family, this forum and my faith that I will get better. As said RA comes with the not so good days and better days that I always embrace. You look after yourself and know the sun may not shine today but it will come out tomorrow. 🌤Stay blessed - Hessie x

Bully915 profile image
Bully915

Sometimes it becomes to over whelming and this is your bodys way of coping with it hope you feel better

Gnarli profile image
Gnarli

Hi handydebs. I'm so sorry you're having such a rotten time and feel for you. We all have "down" times don't we whether we have RA or not. You just have a better reason than most. Educating others is hard as they have no idea what it's really like probably because most of the time we try to put on a brave face to spare our loved ones. Aren't they lucky not to have it? I can't add much to the excellent advice already given. Just be kind to yourself and remember that things will get better. Promise. Huge hugs

Jan

Rahelp profile image
Rahelp

Keep strong and keep your chin up. We all have times when we feel sorry for ourselves Especially if we are alone. Living daily with pain is no easy matter and some times just putting the kettle in seems beyond us.But you will be fine your living family will cheer you up and the pain will feel less. Good luck. Happy Easter and chin up.

Multijo profile image
Multijo

Handydebs,

I understand what you are describing. I don't know what the cause of it is....managing constant pain, feeling like I have aged 20 years beyond my actual age, frustration dealing with the US medical system and docs and insurance companies Who knows the cause, I just know I know what you are describing is very like what I experience periodically. And I hate feeling that way. I actually feel selfish for feeling that way and I think I am not usually a selfish person .....my husband suggested i try thinking of it as an IS. Something that somehow goes along with disease and / or meds. And this IS just needs to be gone thru alone for some reason

I hope you get through that feeling as quickly as possible and a Happy Passove or Easter or spring to you. Perhaps the beautiful flowers can give you comfort.

Jo

CloudTreeDrive13 profile image
CloudTreeDrive13

Give yourself some time out and allow to feel sorry for yourself. The only stipulation i would make is.... DON'T MAKE A HABIT OF IT !!! Take care xxxx

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