I hope I am not breaking any rules here, but you might like to make friends on FB with the American 'Rheumatoid Arthritis Warrior'.
Kelly regularly posts many interesting up to date articles relating to the treatment of R.A. She is proactive, and while you may not agree with some of her thoughts, it will give you an insight into the U.S. treatment of R.A. and in particular the importance of early diagnosis & treatment.
They also have discussions on 'twitter' on a Sunday night. Some of you might like to have a look outside 'our box' in Europe, might motivate a proactive approach to your own treatment.
Let me know what you think?
Regards, Gina.
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Gina_K
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I've given up with FB, got bored with it. But maybe the same person as has the RA warrior website? I do dip into that from time to time, as does have some interesting things, but rather prefer the friendliness of HU... Tho' maybe I should give FB another go.
(And as well as all the UK we've got US friends, as well as Dubai, and inhabitants of Holland, Ireland & France here on HU, so not that insular!)
Didn't mean to sound negative about it - the more info & contacts the better I reckon since this is such an isolating disease. And yes, what would we all do without being able to access the world from home? I have visions of us all, in assorted night gear, covered with hot & cold packs, tapping away at keyboards from odd positions..... Px
Hi Gina, I have joined in that site of American Warrior, but I too, find it less friendly and personal, not same set up as here for commenting. There is good info, and I suppose, from my position, I can say I'm pretty familiar with the AF research and info. So, I enjoy the blogs here and love all of you for allowing me to join in and making me feel welcome.
I have been thinking of all of you and your progress, or delayed progress, every day. It's like having a whole other family across the waves. Love, Loretxxx
I do have fb, but I discovered ra warrior online, before I joined here and I regularly check back on her site.
I found her site very useful for when you first get diagnosed and need to know about the different drugs the pro's and con's. She is the first person to give an insight in what it's like having ra.
im on facebook but but im not new to RA and not heard of the site your on about
chalky
I'm the same as Polly - don't have FB because I'm sick of telling the boys to come for dinner 4 times each mealtime while they facebook their friends - whatever happened to a social life I wonder? I spend quite enough time on HU and my artist's site without starting any more online chatter - I think that's my husband talking now actually!
But I do enjoy R W and her eloquent blogs on everything relating to RA. And other newbies and older hands might find her very interesting and informative and do the facebook/twitter bit too so a good suggestion Gina. TTx
Ps just google RA Warrior Chalky!
I too have RA warrior on facebook, but to be honest I find it hard to keep up with healthunlocked and facebook properly so just do a little facebook and more on here x
I know what you mean, I think I am making my Repititive strain, worse!!!
You cant keep up - but a dip in dip out works. Sometimes, when you are laid up when initially diagnosed you have time you never had to look at stuff on computer, that was my meaning.
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