Are you a member of the social network site facebook ... - NRAS

NRAS

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Are you a member of the social network site facebook & newly diagnosed with R.A.

Gina_K profile image
14 Replies

I hope I am not breaking any rules here, but you might like to make friends on FB with the American 'Rheumatoid Arthritis Warrior'.

Kelly regularly posts many interesting up to date articles relating to the treatment of R.A. She is proactive, and while you may not agree with some of her thoughts, it will give you an insight into the U.S. treatment of R.A. and in particular the importance of early diagnosis & treatment.

They also have discussions on 'twitter' on a Sunday night. Some of you might like to have a look outside 'our box' in Europe, might motivate a proactive approach to your own treatment.

Let me know what you think?

Regards, Gina.

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Gina_K profile image
Gina_K
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14 Replies
helixhelix profile image
helixhelix

I've given up with FB, got bored with it. But maybe the same person as has the RA warrior website? I do dip into that from time to time, as does have some interesting things, but rather prefer the friendliness of HU... Tho' maybe I should give FB another go.

(And as well as all the UK we've got US friends, as well as Dubai, and inhabitants of Holland, Ireland & France here on HU, so not that insular!)

in reply tohelixhelix

Sure Polly, give FB a try, you will find me and my family there :)

Gina_K profile image
Gina_K

Ah you are right re friends from all over. Just thought maybe some newbies could check out, web site just as good :)

Just wish I had all this when I was diagnosed 4 years ago, wascsuch lonely confusing time. Took me while to find different sources of info.

I never even went on computer at home before RA!

Regards, Gina.

helixhelix profile image
helixhelix in reply toGina_K

Didn't mean to sound negative about it - the more info & contacts the better I reckon since this is such an isolating disease. And yes, what would we all do without being able to access the world from home? I have visions of us all, in assorted night gear, covered with hot & cold packs, tapping away at keyboards from odd positions..... Px

in reply tohelixhelix

LOL That's more accurate than you think!

in reply toGina_K

Hi Gina, I have joined in that site of American Warrior, but I too, find it less friendly and personal, not same set up as here for commenting. There is good info, and I suppose, from my position, I can say I'm pretty familiar with the AF research and info. So, I enjoy the blogs here and love all of you for allowing me to join in and making me feel welcome.

I have been thinking of all of you and your progress, or delayed progress, every day. It's like having a whole other family across the waves. Love, Loretxxx

sciqueen profile image
sciqueen

Hi Gina

I do have fb, but I discovered ra warrior online, before I joined here and I regularly check back on her site.

I found her site very useful for when you first get diagnosed and need to know about the different drugs the pro's and con's. She is the first person to give an insight in what it's like having ra.

Not sure how I would access her via fb?

Sci x

Gina_K profile image
Gina_K in reply tosciqueen

just search under friends, you know where you go to include anybody.

Ps. I did try the chat on twitter Sunday nights, but moved to fast for me. Lol!

Gina_K profile image
Gina_K in reply toGina_K

Er send her friend request, I am crap at explaining things sos.

sciqueen profile image
sciqueen in reply toGina_K

ok thanks, I will let you know how I got on

Sci x

chalky1938 profile image
chalky1938

im on facebook but but im not new to RA and not heard of the site your on about

chalky

I'm the same as Polly - don't have FB because I'm sick of telling the boys to come for dinner 4 times each mealtime while they facebook their friends - whatever happened to a social life I wonder? I spend quite enough time on HU and my artist's site without starting any more online chatter - I think that's my husband talking now actually!

But I do enjoy R W and her eloquent blogs on everything relating to RA. And other newbies and older hands might find her very interesting and informative and do the facebook/twitter bit too so a good suggestion Gina. TTx

Ps just google RA Warrior Chalky!

I too have RA warrior on facebook, but to be honest I find it hard to keep up with healthunlocked and facebook properly so just do a little facebook and more on here x

Gina_K profile image
Gina_K in reply to

I know what you mean, I think I am making my Repititive strain, worse!!!

You cant keep up - but a dip in dip out works. Sometimes, when you are laid up when initially diagnosed you have time you never had to look at stuff on computer, that was my meaning.

warm hugs to all, Gina.

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