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Non Hodgkin's Lymphoma Friends
1,164 members540 posts

Good bye zydelig (idelalisib)

I've officially been taken off zydelig after 27 months! I think it might be some kind of record. The side effects were starting to multiply almost daily. Of course I had loose bowels for many months but I learned to cope. Five months ago I got a cough that wouldn't go away. About two week back I had my first attack of pyrexia with uncontrollable shivers. Scared the hell out of me. Two days ago, about the day I stopped the meds, a rash grew on my elbow and has since moved to my legs. What now? Wait and watch and take one day at a time.

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Hope each day you see improvement and good health...


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