Good bye zydelig (idelalisib) - Non Hodgkin's Lym...

Non Hodgkin's Lymphoma Friends

1,772 members799 posts

Good bye zydelig (idelalisib)

R-16728 profile image
1 Reply

I've officially been taken off zydelig after 27 months! I think it might be some kind of record. The side effects were starting to multiply almost daily. Of course I had loose bowels for many months but I learned to cope. Five months ago I got a cough that wouldn't go away. About two week back I had my first attack of pyrexia with uncontrollable shivers. Scared the hell out of me. Two days ago, about the day I stopped the meds, a rash grew on my elbow and has since moved to my legs. What now? Wait and watch and take one day at a time.

Written by
R-16728 profile image
R-16728
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Judyhoneycomb profile image
Judyhoneycomb

Hope each day you see improvement and good health...

You may also like...

Zydelig Reaction

symptom-free until 2014. The last two years have been rough. I was on a Zydelig regimen but last...

\"I'm good\"

I had had my three month visit with oncologists and she said my numbers are all good and I'm fine....

New to group-Marginal zone lymphoma

year survivor of marginal zone lymphoma. About two years ago my spleen double in size and the...

Are supplements a good idea?

My experience with NHL

grade three. I took Rituxan x one day & Bendamustinr x two days monthly . Also Neutropenia on...