Non Hodgkin's Lymphoma Friends
1,026 members457 posts

YOBO

First time on HU,my name is mark, I was diagnosed with Waldenstrom macro globulenemia, NHL, in 09. My cancer has been linked to Agent Orange, which unknown to me I had come in contact with while serving in Korea. I have received chemo 3 times since. I've read that the mortality rate for NHL could be 6-10 years. Any comments concerning this would be appreciated! Thanks everyone and God Bless!

9 Replies
oldestnewest

Hi Mark, welcome to our NHL community! We're happy to have you

Reply

Hi Mark and welcome - I'm sorry I don't have any info that may help good luck and best wishes 😀

Reply

Hi Mark, welcome to NHL friends. I wouldn't focus on mortality rates as they depend on so many variables and we are all individuals. I try to focus on keeping myself healthy and let the doctors do the analysing. We are sharing a lot of information here about staying healthy and none of it is extreme or hard to do. It was bad luck that your illness was caused by that chemical. I hope someone will chime in with experience of Waldenstroms as we all have different forms of Lymphoma. Mine is follicular B cell. Keep coming back as we are all supporting one another.

Reply

Mark, please don't get too wrapped up in the mortality rate stats of NHL. Everyone is different. Back in 2008, I was given 5 years. It is now 2017, I have two types of NHL and I have experienced one or the other type of NHL in 2008, 2012 and 2016. I can assure you that I am not about to die any time soon.

I guess if you choose to believe that you are going to die in 6 to 10 years you will. I chose to ignore those stats and, with an extremely positive attitude, I am living a somewhat active life both physically and mentally.

4 likes
Reply

Hi Mark, My NHL could've been linked to Hep C that I got from multiple blood transfusions in the mid-79's, or it could've been from the SV40 virus in all polio vaccines given in the late 50's-60's. (Read Dr. Mary's Monkey) If you've read previous postings you will see that I strongly recommend books by Dr. Ken W. Crawford. Nu-Oncology: Cancer Prevention & Anti-Aging is his latest book. His food & drink suggestions have helped me greatly. So much so, that he asked me to write the Foreword in his book! Best of luck to you. Susan

3 likes
Reply

welcome mark

Reply

For some patients, remission lasts many years. I had a neighbour who was doing fine after chemo in the 70s. The fact is that many NHL sufferers will likely die of other causes.

1 like
Reply

Hello agentorange 70

I was diagnosed when I was 45 and will be 69 this year's. They told me 5 to 10 at first but people are living longer since they have better meds to treat.

Sue

Reply

Sorry I just I forgot to address by Mark.

Reply

You may also like...