Kidney disease - Nephrotic Syndrome in the gene NPHS2

[telmamartins]

I am new here, i am mother of a 1 year old boy, he was born with nephrotic syndrome in the gene NPHS2.

From the moment he was born he did some tests, but only now after the genetic study was the diagnosis possible.

I write this post with hope that someone muy help with information, testimonials, everything.

[AHP2018 NKF Ambassador]

I'm sorry that your son has nephrotic syndrome. I will try to lend support in whatever way I can. My daughter had a kidney transplant 13 years ago due to a genetic issue. How can I help?