We would like to invite you to a monthly drop-in virtual gathering of parents who are, or have been the caregivers of a child with chronic kidney disease. The meetings will consist mainly of open dialogue, a place where we can all feel held and supported in processing the many facets of this challenging journey. This gathering will not be staffed by a mental health professional, and we aim to have this be a co-led space where all participants are able to share their experiences and wisdom.
We are the Pye Family; our 21 year old son was recently diagnosed with stage 5 CKD (IgAN) and received a transplant in October 2024. Through the past year we have felt overwhelming sorrow and also so much love and care from our community.
However, it’s become quite clear that our lives have changed forever, and that we are in great need of walking this path with other parents or caregivers who understand one another via shared experiences.
We have searched for a support group such as this, but have not been able to find a community specifically for parents and caregivers in a similar situation.
We see immense healing potential in a space such as this, and we hope you will join us!
The group will meet via zoom on the last Tuesday of the month, from 7-8pm EST. Please contact plyn8r@gmail.com if you are interested.
Chronic Kidney Disease 
15 and Stage 4 CKD
