Don’t want surgery : Hi ! My daughter... - Parents of Childr...

Parents of Children with Kidney Disease

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Don’t want surgery

Lpfeiler profile image
7 Replies

Hi ! My daughter is 2 with hydronephrosis and have been doing very well. The doc has given us a few surgical options but is leaving it in our hands. She has 50/50 function so he does not really want to remove any part of her kidney just yet.

I want to give her body time still and we believe God is in the process of healing her. Once we do a surgery and alter her physically there’s no going back. I don’t feel qualified to select which surgery would be the best option. If it’s up to me right now I’d just wait a bit longer.

My question. Is anyone have a child with hydronephosis who opted out of surgery? And if so how are they doing ?

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Lpfeiler
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7 Replies
Hydro2010 profile image
Hydro2010

Hi my son 9 has been four times on surgery because we wait to long for his first surgery . His kidney became to big with the years . Know his kidney its not working so good and we are waiting for the last surgery that will be to remove that his left kidney .

Lpfeiler profile image
Lpfeiler in reply to Hydro2010

Thank you so much for your input

Oceanblues profile image
Oceanblues in reply to Hydro2010

Hi Hydro... my son is almost in exact same situation.. but he is only 3yo. May i ask what the doctors say.. will he be fine with his other "good" kidney? Does he have slightly lower GFR due to having only one functional kidney?

Hydro2010 profile image
Hydro2010 in reply to Oceanblues

Yes his right kidney us working good , at first the plan was a transplant but as he has been over for to long with his kidney so big and not working how it should he had a ureter damage . So know he plan is just remove and keep on eye on his good kidney . Some special diet and treatments wil work good for his health

Oceanblues profile image
Oceanblues in reply to Hydro2010

I see, thank you. If he had one good kidney why would they consider tra nsplant? Im glad he is doing well!!

Hydro2010 profile image
Hydro2010 in reply to Oceanblues

That was at the first option after surgery

Liha profile image
Liha

My son was diagnosed with hydronephrosis at 1½ and the damage was so severe that the scan shows 0% performance on the right kidney so we did the surgery and he is doing very fine now

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