stage 3

[Otterlover47]

My daughter was diagnosed with CKD in September. At that time she was stage 2. We just got more testing and she is now stage 3 (almost stage 3B). I hear stage 3 is when medication starts. Is there any advice you have to share that can help when we see the doctor later this week ?

[Otterlover47]

she is 15

[MatrixMatriarch]

my son is stage 3 and is 5. We have been on a b vitamin, electrolyte medication and a couple of others here and there. It has been manageable. You will settle into a routine. I wish you luck! Keep us updated!

[Otterlover47 in reply to MatrixMatriarch]

Thank you. I appreciate your response. I wish you luck with your son!

[Quamel_Mom]

Hey there, when my son was in stage 3 the doctors were keeping an eye on his electrolytes. And monitoring all bloodwork levels. Best advice is stay strong and keep a journal and write down whatever questions that comes to mind. Because your mind be in overload, so many things you want to ask but do not know where to begin. So when you go to the doctor appointment you can ask whatever questions you may have. My son journey began at age 2 , and received his transplant at age 5. It’s hard but do not feel as if you’re alone. Whenever you need to talk we are here for you. Blessings are going up for your daughter and family. You got this mom ! Please keep us posted on how your daughter doing.

[Otterlover47 in reply to Quamel_Mom]

Ypur response touched me! It actually had me crying (in a good way! You were right there are so many questions that I have. I think writing them down taking a journal book with me to the doctors appointment is great. We see her doctor Monday afternoon. My mind has been spinning definitely with overload from everything that I am trying to learn about her diagnosis and the best way that I can support her. I have definitely felt those moments of feeling alone and nobody understanding. It is nice to know that there is a community of moms that have gone through their journey with this ! I know all of ours are not the same however it’s nice to know that we are here for each other.

Your son seems so young compared to my daughter and sorry that you had to go through that. How is he doing now that he has had his transplant?

[Quamel_Mom]

Sorry to make you cry. However I understand because I have been there and still continue to be. It’s not easy being a caregiver and a parent at the same time. At the beginning of our journey this platform was not here , so I am glad that this was created it was desperately needed. So we all can be here for one another. Since transplant he has been doing great.