long wait for typeO

[Bird_watcher]

My husband, who is also type O, had to wait 6 years for his transplant. He got the call in October of 2020 in the middle of the COVID pandemic. He’s doing great now in 2024. We did hemodialysis at home with NextStage. Our clinic taught us how to run the small portable machine & all the supplies & equipment were delivered to our house. By the way, you can easily travel with the machine. The treatments were 5 days a week, but for only 2 hours. He felt well enough after the shorter treatments to participate in daily activities. Clinic treatments, 4 hours long & 3 day a week were exhausting. Good luck & Hope you get the call soon.

[Beachgirl32]

glad your husband got the call and doing so well

I thought about doing hemo dialysis at home but waiting to see how I do with needles they put in a fistula but it doesn’t work still using the chest port. Plus my husband can not help me I take care of him and goi g to dialysis three days a week for three hour give me a little break .

Right now I’m I active on the transplant list cause of low ejection fraction heart doc think we can get it up when we do I hope I get that call been on list almost three and half year .