Hi, hope you are all doing well. I’ve just been curious if anyone on this page has/or knows someone who has the kidney disease I have, it’s called cystinosis. I’ve only ever met one other person with it. I’m from Scotland so would be really interested if anyone else on here has the same condition.
Thanks!
turned down transplant 
Preparing for a new chapter
Tap water PD solution pilot study information
Starting peritoneal dialysis!!
