Has anyone experienced breaking out in a rash. Possibly due to the PD solution..
Rashes: Has anyone experienced breaking out... - Kidney Dialysis
Rashes
Written by
yrufatt
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13 Replies
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I developed a reaction to venofer and my whole body broke out in a terrible rash and blister and felt like I was being burned from the inside out. I was referred to a dermatologist and it was defined as third degree burns. I'm 18 weeks later and skin is still really bad. I'm having UV light therapy.
Have you spoke to the PD team? Are you new to PD dialysis.
Hope you get sorted soon as itchy rashes are horrible
Oh my gosh. That is awful!. What is "venofer"?
Venofer is an iron supplement that I take once a week through the dialysis machine to help stop anemia and to maintain a good ferritin level.
I have a LOT to learn about. How the heck do you keep up with all of this.
I do home haemo, I started last year, and I'm abit of a control freak as need to know what's going on. I usually keep a note of questions and then go through them with my consultant.
Your going PD then? When did you start dialysis?
I started in December 2019. I have been doing PD since then and it works out so much better than going into a center with all the illegals who are on the list oh, and the TVs blaring the Mexican channels. I live in California so they have been given rights..unfortunately...
I was able to do PD as very petite so wouldnt have been able to hold the fluids. I'm very lucky to be able to do haemo at home, it's not that common but works really good for me as I'm in my 30s and all the people that are going to the unit our at least 60s.
I'm from England and know things are different in the US.
I hope PD has made you feel any better?
Ahh, you are from England. I have a trip to Fordham England planned for the end of April to do some family history stuff. It's one of those things I've had on my bucket list for a long time that I need to do before starting dialysis. Not sure it's that different here than In England, I think the same options are pretty much available in both places. I chose PD so I can do it at night and continue to work during the day. But they say it's not a long term solution, probably 5 years at the most, then I'll have to switch to what you are doing most likely, so I have have a few questions when that time comes!
You may need to take a little time off work as here you cant go straight to nocturnal PD as you need time for your body to adjust to the catheter and peritoneal bag. Also your body needs to adjust too. What is your gfr? I was told in 2009 I would start dialysis and kept going to 2019. Dont get me wrong it was hard going, but I followed their strict medication plan, diet and exercise. I think I was one of the lucky ones.
I had my fistula put in june 2017 as I had ablip and lots of swelling 16kg and then your as small as me it's a lot. I bounced back and my nick name my consultant gave me was come back queen. I had to have a revision just before dialysis was started so I didnt start till my renal function was 2.5.
My advise is dont let your function get that low, as it takes longer to bounce back.
I did not know that you couldn't go straight to nocturnal PD when you first start. That's very good info to know. Not sure what my gfr is, they just said I was about 13% . I'll find out more when I go back in march. Boy if I could hold off on dialysis for a few more years like you did, that would be swell (pun intended). So welling was what clued you in that it was "time". I'm a wus when it comes to being uncomfortable, so I'll probably throw in the towel a lot sooner than you did. You're a trooper to last as long as you did. But girls are better than guys at stuff like that it seems, but that was a lot of swelling you took on. That had to feel very odd. I guess I'll see how it goes in coming months, or hopefully, years. I feel fine right now, just feel a bit tired is all.
Sure do appreciate all the info. Share anything else you can think of. I would really like to find more information about what I should be eating and drinking right now. I've found a few things online, but they're pretty generic. They don't often give information about a particular item on the store shelves. And do I need to be drinking MORE water before I start PD, or LESS water during this time before PD. Things like that.
I'm supposed to start PD sometime this year. Not sure exactly when. The folks I've talked to at the dialysis center say "You will know", so i guess I'll figure it out as I go along. I have Polycystic Kidney Disease so my kidney function loss has been gradual as the disease progressed over the last several years.
You should get a kidney by then.
You should drink around 32 ounces a day. PD is ready once you have the surgery have have the catheter inserted.
