Greetings everyone,
I'm Nyx from Toronto Ontario Canada I'm 42 and living with multiple medical issues, I have acute intermittent porphyria, polycystic ovarian syndrome, dystonia (unknown type), spinal osteoarthritis, degenerative disk disease, (juvenile) arthritis, type 1 diabetes, chronic pain, and a few other things.
It has been a nightmare of a journey to get some of the diagnosis big time the dystonia diagnosis, the Spinal OA only took 3 years to get dianosed along with the DDD (dianosed same time same appointment.
Looking to connect with others who share one or more of these conditions as it feels very much lonesome.