Just wrote a long answer and cannot find the post.

[Aleish]

I just responded to a post but it’s not showing up????

[Jo-Goode Administrator]

Here is your post: Too many autoimmune diseases and they are calling it overlap syndrome. Started 36 years ago as fibromyalgia. The vasculitis PMR/GCA was 7 years ago and now they think polymyositis. I have been on prednisone for 2 1/2 years and was on Actemra for two years but that biologic gave me dividiculitis. After taken of. The Orencia My pain became unbearable and next possible diagnosis is polymyositis and waiting for some labs to come back. In any event one doc wants to add Orencia biologic shots. Another one said I would feel better on Retuxin but that frightens me for two reasons.

I show that I once had hepatitis. That drug can infrequently cause a deadly brain disease. Actually the Orencia is an issue with past Hep b, but I see a U of Miami doc that is doing more tests to do with the past Hep b and I think she said the information from this test will allow us to know how safe to go on the Orencia.

I also have Primary Immune Deficiency and receive IVIG in a 6 hr. monthly infusion. I know that in a higher dose it’s used for polymyositis.

Anyone with similar issues, please contact me. Thanks❤️

Reply

[Aleish in reply to Jo-Goode]

Thank you. I assume it’s posted now.