So dont feel bad because your symtoms change minute to minute. It happens to all of us! Just cause we did it yesterday, doesnt mean its gonna happen today! π€£ Although we might try! ππ€ππ
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Jesmcd2
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one min Iβm passing out and ambulance arrived . Couldnβt move in 10 min ride to hospital. When we arrived I walked out of the ambulance. Once again walking along and collapsed like a noodle sweating . Lol a gift that keeps giving !
Can't thank you enough for this post. Sometimes I don't know what's worse: living with the crazy unpredictable symptoms or trying to constantly explain my crazy ups and downs to people who can't possibly understand. I always dread the question "how are you?". I have to clarify that I can only answer based on "right this minute". So frustrating...but I've learned to laugh at the insanity. Your post was spot on!
My stand by answer is, lm good! Or, my dad asks Doing Ok? Answer... Alwaysπ cause as much as they want or try to understand, its just beyond them. And thats okππ€ππ
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