Unnumbered post who if not YOU 18 ... - My MSAA Community

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Unnumbered post who if not YOU 18 Mar 2021

RoyceNewton profile image
3 Replies

Good morning my beloved ms family. As always I hope everybody is well. Our nasty ms gremlins allowed us to get a good nights sleep. Mine are starting to wake and cause me a few issues on my face, I hope they allow me to have a few more years of a calm trigeminal Neuralgia face before I have to go back for my next surgery. I am only allowed five per side in total and I have already used 2 on one side and 1 on the other. So here is hoping they stay calm.

To today's point. I believe, say as "YOU" want within the rules. If "YOU" have to vent, cry, have a pity party, be upset. I do not feel this is ever wrong. We are here to support not condemn or belittle. I personally feel there is no need to ever hold back or be embarrassed. I feel we are not here for that. My many writings are not intended too, hurt. In all the world where could I say, "wear protective underwear" and remember my difficult moments with them to "YOU". I can only talk about my intense dislike of needles with "YOU". My ongoing question of what's next with "YOU". If not "YOU" then who? It is always "YOU" and if "YOU" hurt or are scared I can only try to do the same back for "YOU". "YOU" are not alone, "YOU" are never alone, "YOU" are ms sister or brother.

Royce (your ms writer and brother)

We are never alone for we have each other

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RoyceNewton
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3 Replies
Sandydemop profile image
Sandydemop

hi Royce, thanks. Glad not to be alone in this. It's too big for me to hold. I'm sorry to hear about your trigeminal neuralgia. I hope you feel better soon. I'm starting to get really mad at MS.

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

ah these things happen, it is no more than I expected, hope you are doing well

twooldcrows profile image
twooldcrows

i think it is great that even though i know it is a little hard to write about accidents but i think it is great for all to know ha it does happen and we just put on our big patties and keep going may take a few steps back and cry for being embarrassing but it can happen just try to have some extra clothing in the care with you or even in your purse.......ahahhahaha...i know the feelings of it but i just clean up and go on ....i know not all of us are able to deal but we do what we can ....just remember we are all in this same situation ....love and happiness does really help ...laugh out loud it feels good ....

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